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March 2006
Huntington's Disease Society of America's (HDSA) National Advocacy Online Newsletter.
http://www.hdsa.org/site/DocServer/Advocacy_Online_2006.pdf?docID=1001
This issue contains updates on the
http://www.hdsa.org/site/DocServer/Advocacy_Online_2006.pdf?docID=1001
This issue contains updates on the
- Stem Cell Act
- New Medicare Prescription Drug Plan
- Ending the Medicare Disability Waiting Period [see below]
- NIH Reauthorization and
- The Genetic Information Nondiscrimination Act
Ending the Medicare Disability Waiting Period Act of 2005 (S.1217)
Senator Jeff Bingaman (D-NM) introduced legislation (S.1217) to amend Title
II of the Social Security Act to phase out the 24-month waiting period for
individuals who receive Social Security Disability (SSDI) benefits to
qualify for Medicare coverage, as well as to eliminate any waiting period
for those individuals with life-threatening (this term is not defined)
conditions.
For the rare disease community, it is a fasttrack provision that will allow
those with lifethreatening conditions to get immediate coverage before the
waiting period phases out.
Status of this Bill: This Bill has been referred to the Committee on Finance.
Action Step:
We urge our HDSA Advocate's to contact your Senator today asking that they
become a cosponsor to this important legislation. You can find contact
information for your Senator at www.senate.gov
To contact Senator Jeff Bingaman:
703 Hart Senate Office Building,
Washington, DC 20510-3102
Toll-free (in NM): 1-800-443-8658
DC: (202) 224-5521
Fax: (202) 224-2852
Email: senator_bingaman@...
Senator Jeff Bingaman (D-NM) introduced legislation (S.1217) to amend Title
II of the Social Security Act to phase out the 24-month waiting period for
individuals who receive Social Security Disability (SSDI) benefits to
qualify for Medicare coverage, as well as to eliminate any waiting period
for those individuals with life-threatening (this term is not defined)
conditions.
For the rare disease community, it is a fasttrack provision that will allow
those with lifethreatening conditions to get immediate coverage before the
waiting period phases out.
Status of this Bill: This Bill has been referred to the Committee on Finance.
Action Step:
We urge our HDSA Advocate's to contact your Senator today asking that they
become a cosponsor to this important legislation. You can find contact
information for your Senator at www.senate.gov
To contact Senator Jeff Bingaman:
703 Hart Senate Office Building,
Washington, DC 20510-3102
Toll-free (in NM): 1-800-443-8658
DC: (202) 224-5521
Fax: (202) 224-2852
Email: senator_bingaman@...
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