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Two 20 Year Old's With HD Set off on Amazing HD Awarness Events   Message List  
Reply | Forward Message #423 of 443 |
Heather Alimossy from Oregon and Ashlee Duffy from the UK, both 20 year old's who tested positive for HD, both set off to accomplish major HD awareness events the past few days!  Heather leaves today to start a seven-day trek up Mount Kilimanjaro, that will end at 19,340 feet above sea level and hopes to raise $1 million dollars for the HDF and Ashlee who left Saturday to walk 50 miles along the Great Wall of China to raise money for the Huntington Disease Association in the UK!
 
WAAAAY TO GO HEATHER & ASHLEE!  Hope you both also have a TON of FUN while on your journey and have some wonderful stories to tell when you get back home!

Hmmm do I smell a challenge for the young men with HD to come up with their own creative ways to raise awareness to HD to try to out-do these two AMAZING young ladies!!?? ;-)

ARTICLES ON HEATHER
Read about the Klimb for the Kure:
http://www.klimbforthekure.com/bios.html

Step By Step
RCC student's Mount Kilimanjaro climb will raise awareness of hereditary disease
http://www.mailtribune.com/apps/pbcs.dll/article?AID=/20090129/LIFE/901290301
January 29, 2009
Alimossy, diagnosed in November 2007 with the degenerative brain disorder that left her mother wheelchair-bound and unable to speak, is dedicated to raising awareness of Huntington's Disease. Climbing Africa's tallest mountain isn't just the trip of a lifetime. The effort — dubbed Klimb for the Kure — carries the goal of raising $1 million for the Hereditary Disease Foundation, which supports biomedical research.
 
ARTICLES ON ASHLEE
Ashlee's FirstGiving
www.justgiving.com/team_cure_hd
 
Raising funds for brain disease research
http://www.manxradio.com/readNEwsItem.aspx?id=32250
Published Date: 31 January 2009
A 20 year-old Douglas woman, who was recently told she suffers from Huntington's Disease, will today begin her bid to raise money to find a cure. Ashley Duffy is aiming to walk 50 miles in a week along the Great Wall of China in April, and wants to both increase awareness about the condition and collect £5,000 for the Huntington's Disease Association. Dressed, appropriately, in Oriental costumes, she and her friends will launch their campaign in Douglas this evening, with the first in a series of Island pub crawls. Ashley, whose mother also has the disease, has inherited the gene which means she will develop the brain disorder when she gets older.

Ashlee Duffy is determined to walk China's Great Wall
http://www.iomtoday.co.im/charity-news/Ashlee-Duffy-is-determined-to.4850617.jp
Published Date: 07 January 2009
CHINA CHALLENGE: Ashlee Duffy hopes the trek will raise awareness and money for the Huntington’s Disease Association 


Mon Feb 2, 2009 2:59 pm

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Heather Alimossy from Oregon and Ashlee Duffy from the UK, both 20 year old's who tested positive for HD, both set off to accomplish major HD awareness events...
Jean E. Miller
hdcureit
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Feb 2, 2009
2:57 pm
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