2009 HDSA National Convention in Phoenix starts 18 weeks from tomorrow and the National Youth Alliance [NYA] is gearing up for all their events! The below addresses how you can help support the NYA Fund to help young people from HD families attend this convention, who otherwise financially would not be able to attend, the HDSA kickoff of the 2009 NYA Convention Scholarship Application process and brief coverage of other NYA events planned for the 2009 HDSA National Convention.
HDSA's National Youth Alliance [NYA] Website - NYA VP Katie Moser, with the support of HDSA, has been working diligently on the National Youth Alliance's information on HDSA's website. So to keep up with events or to find out if anything new is going on with the NYA, please bookmark the NYA links so you can check it out periodically: Either go to HDSA's website www.hdsa.org and click on the NYA button on the home page or click here: http://www.hdsa.org/nya.html
The 2009 NYA Scholarship Application - http://www.hdsa.org/nya/convention.html
First, all registered members of the HDSA National Youth Alliance should have received a letter dated January 16, 2009, via snail mail, from HDSA announcing the kick-off of the 2009 HDSA NYA Convention Scholarship Application process. If you did not receive that letter then either [a] HDSA doesn't have your correct mailing address or [b] you haven't submitted an application to join the NYA.
Via their letter the Huntington's Disease Society of America announced that it is now accepting applications for 6th Annual National Youth Alliance Convention Scholarship! This Fund was established for all current members of the NYA. If you are a current registered member of the HDSA NYA and did not receive a copy of the letter and application in the mail, you can download a copy here: http://www.hdsa.org/nya/convention/nya-scholarship.html
- Application Deadline - Each NYA member’s scholarship application must be post-marked no later than midnight, Friday, March 13, 2009. The application, essay and all required signatures are to be mailed to HDSA. The instructions are on the application form.
- Notification of Winners - Applicants will be notified no later than Friday, April 3, 2009 if they have won a 2009 convention scholarship.
- Eligibility Requirement - NYA Membership - The NYA Convention scholarship Fund was established for all current members of the NYA. This means in order to apply for a 2009 NYA Convention Scholarship, young people living with HD, ages 9 through 29, must be a current member of the HDSA NYA.
Besides the convention scholarship opportunity, all registered members of the NYA who attend the 2009 HDSA national convention, regardless of their financial position, can receive a special convention registration rate and can also participate in the free fun and educational 2nd Annual NYA Day, which will take place June 4th in Phoenix this year. If you are not a current member, won't you consider joining? The NYA Membership Application form can be downloaded here: http://www.hdsa.org/images/content/1/1/11497.pdf. You can email your filled out application to Mynelly Perez at mperez@... or snail mail it to
HDSA National Youth Alliance
Attn: Mynelly Perez
505 Eighth Avenue - Suite
Attn: Mynelly Perez
505 Eighth Avenue - Suite
The 2009 NYA Scholarship Application
Other 2009 HDSA Convention NYA Planned Activities
2nd NYA Day Thursday June 4, 2009
http://www.hdsa.org/nya/convention/nya-day.html
http://www.hdsa.org/nya/convention/nya-day.html
A day for both fun and education, the 2nd Annual NYA Day is scheduled for Thursday, June 4, 2009. It's free and any registered member of the NYA can attend. Watch the above link for more information, as it becomes available. Anyone planning on attending should plan on traveling to Phoenix Wednesday, June 3rd, as NYA Day will start promptly at 8:00 am on Thursday.
6th Annual NYA Talent Show Friday, June 5, 2009
http://www.hdsa.org/nya/convention/talent-show.html
6th Annual NYA Talent Show Friday, June 5, 2009
http://www.hdsa.org/nya/convention/talent-show.html
Young people attending the HDSA Convention in Phoenix are encouraged to sign up to participate in this annual fun evening! We want to see YOU on stage! Contact NYA member Scott Nicholas, the 2009 HDSA NYA Talent Show Chairperson at nya@... for information and/or to sign up. If you're signing up, Scott will need the following from you:
Name:
Age:
Hometown:
E-mail:
Act:
Time:
Props:
Age:
Hometown:
E-mail:
Act:
Time:
Props:
[CD player, microphone, possible ipod connector to stereo etc. ]
9th Annual NYA Silent Auction
http://www.hdsa.org/nya/convention/silent-auction.html
9th Annual NYA Silent Auction
http://www.hdsa.org/nya/convention/silent-auction.html
Once again the members of the HDSA NYA will soon be going out to local area businesses to solicit contribution of items to be auctioned off at the Silent Auction in Phoenix Saturday, June 6th. However, as in years past, the NYA needs the support of HD families, Chapters and Centers of Excellence to contribute items for the auction too, to help make it the success it has been in the past. NYA member Staci Nicholas is the 2009 Silent Auction Chairperson and she has information on the above link on ways you can help or where you can ship any items you would like to donate this year.
How You Can Support the NYA Fund
The money for the NYA convention scholarships comes from the fund raising efforts the members of the HDSA NYA have throughout the year, from their annual Talent Show and Silent Auction, from the generosity of the few HDSA Chapters who budget funding to support the NYA Scholarship Fund and from the HD community at-large, i.e. you!
In 2008 the starting balance in the Fund was $16,908.19 and, after providing 25 scholarships to NYA members, that left a balance of $2, 393.14. With the money the NYA raised at the 2008 convention, after their donation to HDSA HD Research, the balance for 2009 scholarships is $14,011.14. That does not reflect any commitments the Chapters made to budget for this fund. Bottom line is the current balance in the NYA Scholarship Fund is less then what was paid out to send 25 NYA members to Pittsburgh last year.
In order to make sure there is enough money in the Fund to help the NYA members who apply for a 2009 convention scholarship fund get the financial support they will need to attend the convention in Phoenix, your support would be greatly appreciated! If you would like a donation to the 2009 NYA Convention Scholarship Fund, in any amount you feel comfortable donating, there are two options. One, you can go to the NYA FirstGiving site www.firstgiving.com/nya and make a donation or go to this HDSA NYA webpage http://www.hdsa.org/nya/convention.html
Thank you for your continued support to the HDSA's National Youth Alliance!
Jean Miller, Sue Hodgson & Dave Hodgson - NYA Advocates