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CVC Launches Program to Help Patients with Huntington’s Disease
http://caringvoice.org/november2008.htm
Caring Voice Coalition (“CVC”) is pleased to announce a new program to assist patients diagnosed with Huntington's disease.
CVC is a national non-profit organization that helps patients afflicted by certain diseases afford costs—such as copayments and premiums—related to the prescription therapies for their diseases.
CVC’s assistance has previously been limited to patients affected by Pulmonary Hypertension, Alpha-1 Antitrypsin Deficiency, Idiopathic Pulmonary Fibrosis, and Chronic Granulomatous Disease. The new program expands CVC’s assistance to include patients with Huntington's disease, an inherited disorder that destroys brain cells involved in emotions, intellect, and movement.
“As medical costs continue to soar, CVC is working diligently to help underinsured patients afford costs that would otherwise prevent them from beginning or remaining on therapy,” said Pamela Harris, CVC President. “We are excited to expand our programs so that we can help patients diagnosed with Huntington’s disease.”
8249 Meadowbridge Road
Mechanicsville, VA 23116
Tel: (804) 427-6468
Toll-free: (888) 267-1440
Email: CVCInfo@...
- Alpha-1 Antitrypsin Deficiency (Alpha-1)
- Chronic Granulomatous Disease (CGD)
- Huntington's Disease (HD)
- Idiopathic Pulmonary Fibrosis (IPF)
- Pulmonary Arterial Hypertension (PAH)
At the Caring Voice Coalition we understand that the diagnosis of a chronic disease often results in situations and emotions that deeply impact a person’s life. Visits to the doctor, complex treatment regimens and periodic hospitalizations make daily life harder to manage. Financial burdens caused by medical appointments, insurance costs and therapy co-payments may strain already limited financial resources. And feelings of depression, fear, and anxiety may make it hard to manage day-to-day needs, to plan and to hope for the future. To a person living with a life-threatening chronic disease, these challenges are often all too real.
Caring Voice Coalition seeks to empower our patients to meet these challenges through comprehensive, effective programs and a knowledgeable, caring staff. We value our reputation as a responsible, responsive organization with a unique, holistic approach to improving the lives of our patients.
Our current programs include:
- Insurance premium assistance
- Insurance co-payment assistance
- Medicare prescription drug assistance
- Identifying sources of coverage;
- Assisting with enrollment;
- Reviewing and explaining benefits;
- Mediating problems and complaints; and
- Preparing and submitting appeals.
Our Reimbursement Specialists will work with you to contact the parties necessary to gather information and resolve insurance problems and disputes. This includes insurance companies, employers, government agencies, and any other entities involved in ensuring coverage for a life-sustaining medication or therapy
- Providing educational materials that explain the patient’s disease and how it develops;
- Referring patients to support programs and services designed for people using a particular medication or drug therapy;
- Identifying peer support groups and other programs which may provide emotional support;
- Completing a “Benefits Check Up” screening, which lists state and federally-funded programs under which the patient may be eligible for assistance; and
- Locating community social service programs that may assist with living necessities such as shelter, clothing, food, and transportation.
To be eligible for assistance, an applicant must meet the following criteria:
- The applicant must have one of the specific chronic diseases supported by CVC;
- The applicant must be a US citizen residing in the United States or a permanent legal resident of the US;
- The applicant must have health insurance with a monthly insurance premium or monthly prescription co-payment that he or she cannot afford;
- The applicant must be on an expensive FDA-approved therapy related to the disease;
- The applicant must not be receiving or eligible for other assistance; and
- The applicant must demonstrate financial hardship.
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