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H.R. 6259: Huntington's Disease Parity Act of 2008 On-line Petition
http://www.petitiononline.com/HR6259/petition.html
http://www.petitiononline.com/HR6259/petition.html
As of this morning, August 16, 2008, there are only 22 signatures to help move this bill for Huntington's Disease. Please let the House Ways and Means Subcommittee on Health know how important this bill is to your families and friends living with HD. Sign the petition then pass this to everyone on your mail list and request that they sign the petition too! If anyone wants to read or share H.R. 6259 HD Parity Act of 2008 before signing, I copied it and it's attached in MSWord97.
I wrote a letter to my representatives through the HDSA website link. Just to let you know your voice is important, below is from a letter written by Florida Congressman C.W. Bill Young dated August 6th that I received this week in response to my letter. Congressman Young will be a part of the Grand Opening ceremonies at the Armed Forces Military Museum [http://www.armedforcesmuseum.com/] today and I'm hoping I get the opportunity to thank him in person!
Thank you!
Love, Jean
From my letter from Congressman Young:
Thank you for letting me know of your support for H.R. 6259, the Huntington's Disease Parity Act of 2008. You can be sure that I share your interest in this matter and appreciate knowing your thoughts. As you know, H.R. 6259 would require the Commissioner of Social Security to revise the medical criteria for evaluating disability in a person diagnosed with Huntington's Disease and waive the 24-month waiting period for Medicare eligibility for individuals disabled by Huntington's Disease.
H.R. 6259 has been referred to the House Ways and Means Subcommittee on Health where it awaits further consideration. Because of your interest in this matter, and in an effort to be of all possible assistance to you, I have taken the liberty of sharing your support for the Huntington's Disease Parity Act with my colleagues on the subcommittee. As they continue to review H.R. 6259, please know that they will keep your thoughts in mind.
Again, thank you for taking the time to contact me regarding this matter of mutual concern. It is my hope that you will continue to keep me apprised of your interest in legislative issues important to you.
/s/ Bill Young
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