Having problems with message search?
Can everyone help me out with this one, i emailed her already but would like more advice to give her. My group hasn't been very active lately so I'm reaching out to others. Please email what you would want to tell her and I will forward it to her.
Thanks,
Lynn
-------------original message--------------
hi my name is jackie im 34 and have huntingtons. I just had to put
my father in a nursing home last year for hd also, very tuff
decision. my grandma died of hd in 2000 right after her sister did.
now i just found out my brother has hd too. my sister has decided
not to be tested.
its frusting because i adopted my daughter 3 years ago. i thought my
hd would start later in my life. im afraid i just want to see her
grow and fall in love and do all the things that i always dreamed my
child doing. . I love her so much. its painful because i see how
she knows mommys different.
im pretty positive. ive gone through so much in my life in 1993 i
was robbed and attacked and suffered severe damage to my body. i
lost the use of my left arm due to rsd and thoracic outlet syndrome.
eventually the rsd spread to my leg- rsd causes severe pain. ive had
to have two implanted spinal cord stimulators put in my back to try
to help the pain. Ive had severe migraines since 1993. and even
though i still go through pain from my attack every day hd scares me
more. my right hand started having tremors, and my upper body is not
balanced, i sorta sway. last winter i fell 8 times, i fell 1 time
this year. the last two years ive had to have spinal cord surgery
because of my falling.
i dont want my daughter to have to grow up and see her mommy
detoriate. my husband is angry hes afraid too. i love my husband
and daughter.
------------------------ Yahoo! Groups Sponsor --------------------~-->
Does he tell you he loves you when he hits you? Abuse. Narrated by Halle Berry.
http://us.click.yahoo.com/CjRcdD/rbOLAA/xGEGAA/q4aolB/TM
--------------------------------------------------------------------~->
Yahoo! Groups Links
<*> To visit your group on the web, go to:
http://groups.yahoo.com/group/Huntingtons_disease_online/
<*> To unsubscribe from this group, send an email to:
Huntingtons_disease_online-unsubscribe@yahoogroups.com
<*> Your use of Yahoo! Groups is subject to:
http://docs.yahoo.com/info/terms/
hi my name is jackie im 34 and have huntingtons. I just had to put
my father in a nursing home last year for hd also, very tuff
decision. my grandma died of hd in 2000 right after her sister did.
now i just found out my brother has hd too. my sister has decided
not to be tested.
its frusting because i adopted my daughter 3 years ago. i thought my
hd would start later in my life. im afraid i just want to see her
grow and fall in love and do all the things that i always dreamed my
child doing. . I love her so much. its painful because i see how
she knows mommys different.
im pretty positive. ive gone through so much in my life in 1993 i
was robbed and attacked and suffered severe damage to my body. i
lost the use of my left arm due to rsd and thoracic outlet syndrome.
eventually the rsd spread to my leg- rsd causes severe pain. ive had
to have two implanted spinal cord stimulators put in my back to try
to help the pain. Ive had severe migraines since 1993. and even
though i still go through pain from my attack every day hd scares me
more. my right hand started having tremors, and my upper body is not
balanced, i sorta sway. last winter i fell 8 times, i fell 1 time
this year. the last two years ive had to have spinal cord surgery
because of my falling.
i dont want my daughter to have to grow up and see her mommy
detoriate. my husband is angry hes afraid too. i love my husband
and daughter.
------------------------ Yahoo! Groups Sponsor --------------------~-->
Does he tell you he loves you when he hits you? Abuse. Narrated by Halle Berry.
http://us.click.yahoo.com/CjRcdD/rbOLAA/xGEGAA/q4aolB/TM
--------------------------------------------------------------------~->
Yahoo! Groups Links
<*> To visit your group on the web, go to:
http://groups.yahoo.com/group/Huntingtons_disease_online/
<*> To unsubscribe from this group, send an email to:
Huntingtons_disease_online-unsubscribe@yahoogroups.com
<*> Your use of Yahoo! Groups is subject to:
http://docs.yahoo.com/info/terms/
Offline 
Send Email