Dear Dr. Dommerholt,

I wanted to make you aware of an upcoming webcast series by the health advocacy program, Patient Power, discussing Huntington’s Disease with medical experts in the field.  The shows will air live at noon US Central Time Monday, June 2^nd through Wednesday, June 4^th, at www.patientpower.info.  Listeners may call in with their questions for the featured doctors live or e-mail questions ahead of time.  I know your members would gain valuable information from the show, and I sincerely hope you can pass this message along to them via your website and/or newsletters.  As always, all of our shows are entirely free for downloading or streaming.

Further information is below and attached.  Please let me know if you have any questions, or if I can be of assistance.

Best,

Julia Youssefnia
Patient Power
julia@...

SERIES ON HUNTINGTON’S DISEASE

June 2^nd - 4^th 2008

Patient Power® is recognized for its dedication to educating patients about illnesses that are not covered by mainstream media. One such illness is Huntington's Disease (HD), also commonly referred to as Huntington's chorea. HD is a neurodegenerative disease that breaks down motor skills and cognitive abilities, and causes various emotional and physical changes like depression, uncontrolled movements, moodiness, obsession, compulsion, and even rage. Join us for a series of three webcasts, with leading experts from around the country.

Monday, June 2^nd – “Juvenile Huntington’s Disease”:

Juvenile Huntington’s disease is rare, but certainly not unheard of. It can affect adolescents any time between infancy and young adulthood. Join this webcast to hear why symptoms of juvenile HD vary from that of adults. Hear from two leading experts, Dr. Martha Nance and Dr. Sandra Kostyk. Both experts will discuss the latest in the HD numbers affecting children, genetic testing, and the importance of a team approach for this condition.

Tuesday, June 3^rd – “Huntington’s Disease in the Prime of Life”:

This program will address issues surrounding Huntington’s disease in the prime of life. Why does this disease vary in the rate of progression? Are there lifestyle factors that play a role? Join medical expert, Dr. Karen Anderson, who will answer your questions about coping with HD in the prime of life, concerns over child safety around HD parents, HD patients depending on others, and you’ll also hear Dr. Anderson separate myth vs. facts.

Wednesday, June 4th – “Huntington’s Disease Research and Progress”:

Researchers are making progress with Huntington’s disease, as ongoing research has been underway. Hear from two leading HD experts, Dr. Jody Corey-Bloom and Dr. Joseph Jankovic, as they discuss the Memantine clinical trial, where we are headed, and current and future clinical trials. This discussion is designed to answer your questions about research and progress. Don’t miss the chance to ask leading experts the questions that matter the most!

HOW TO PARTICIPATE: 

Listen live at www.patientpower.info at 12 pm to 1 pm Central Time

Email questions to questions@...       

ABOUT PATIENT POWER:

Patient Power debuted in February 2005 and is a weekly show hosted by Andrew Schorr, ten-year leukemia survivor, patient educator and patient advocate.  The show features renowned medical experts on topics that include cancer, pain, diabetes, and heart specialists, as well as experts in clinical trials and top pharmacists.  The show serves to bring patients together in a radio and Internet community to provide information about available treatment options.  Patient Power takes questions from callers and Internet listeners on topics such as how to find the right doctor, how to advocate for effectively, when to get a second opinion from a specialist and how to evaluate one treatment option over another.

Over 400 hours of replays are available for downloading, streaming or podcasting at www.patientpower.info. You can search by date, by topic and by guest.