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Reply | Forward Message #368 of 447 |
The Northern California HDSA Chapter recently held their 2nd Youth Support
Group event, with a Bowlathon, on May 31 in Fresno.
Another JHD Mom just wrote me about a wonderful video made by a young man
with JHD about for this event.

I love it that our teens and young adults are so savvy and can make such
moving documentaries! Ralphie's is a terrific video and brings home the
message WHY we need a CURE for our KIDS now!!! Please take a few minutes to
watch it! His Mom's email is at the end of the video, I'm sure Ralphie
would appreciate getting a note thanking him for a great video obviously
made with a lot of love!

Thank YOU Ralphie!!!

Ralphie's HD Slideshow
http://www.youtube.com/watch?v=HNnS_pXfJrg
3:35 Minutes
A short video raising awareness about Huntington's Disease and the efforts
by a family to also raise funds to help combat this disease. Made by Ralphie
age who 16 has Juvenile HD and includes Annie 13 JHD and Randy 11, at-risk.




Thu Apr 17, 2008 11:18 pm

hdcureit
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Message #368 of 447 |
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The Northern California HDSA Chapter recently held their 2nd Youth Support Group event, with a Bowlathon, on May 31 in Fresno. Another JHD Mom just wrote me...
Jean E. Miller
hdcureit
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Apr 17, 2008
11:20 pm
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