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Below is information on the upcoming upstate New York area HD conference May 3rd. As always, I encourage anyone who can attend their state HD conferences to........please do! You have the opportunity not only to get updated on HD research and clinical trials and information that can help you plus you have the opportunity to meet others living with HD and make some friends who truly understand! There are several great sessions for people with HD, caregivers, those at-risk and young people!! Jimmy Pollard will be there and there will be a session for young people/NYA members!
Below and attached is the flyer and information on this conference. The registration deadline is 27 April and the registration fee is $25.00 for the first person, $20 for each additional person.
Living Well with Huntington’s Disease
Sat. May 3, 2008
Holiday Inn Buffalo Int'l. Airport Hotel
4600 Genesee Street, Cheektowaga, NY
Driving/Map: http://snurl.com/24psd
The goal of this program is to reach out to those interested in learning more about
Disease. People with Huntington’s Disease, caregivers, those at risk, and health care professionals
are invited to attend.
8:00 — 8:30 am Registration (with juice, coffee, muffins, and bagels)
8:30 — 8:40am Welcome Alan LaDonna
President, Upstate New York Chapter
Huntington’s Disease Society of
8:40— 9:30am HD Research
What have we learned and how can you help?
Kevin Biglan, MD
University of
9:30 — 10:00am A Personal Perspective: Living with HD
Barbara Field
10:00 — 11:00am Thinking about Thinking with HD, Part I
Advice for family members to accommodate changes in
their loved ones more effectively.
Jimmy Pollard
Director, Huntington’s Disease Service
Tewksbury Hospital
Tewksbury, Massachusetts
11:00 — 11:15 am Break
11:15 — 12:15pm Thinking about Thinking with HD, Part II
12:15 — 1:00pm Buffet Lunch
Breakout I [Chose one]:
1:00 — 2:00pm
*Music Therapy and HD
Rosie Oliva, LCAT, MT-BC
Music Therapist
University of
Living at Risk: Genetic Testing Issues and Beyond
Laura M. Tripi, M.S., C.G.C.
Certified Genetic Counselor
Women and Children's
Division of Genetics
How to Accommodate Cognitive Changes in More
Advanced Stage HD
Jimmy Pollard
Director, Huntington’s Disease Service
Tewksbury Hospital
Tewksbury, Massachusetts
2:00 — 2:15pm Soda and Popcorn Break
2:15 — 3:15pm Breakout II (Choose one):
*Physical Therapy and HD
Alexandre doNascimento, PT, DPT, ATP
Head Physical Therapist
Long-term Care in HD
Gary DiNezza, PhD
Director of Psychology Training
Buffalo Psychiatric Center
Young People and HD
Amy Chesire, LCSW-R, MSG
Social Worker
University of
Closing and evaluation
* Recommended for people with HD
Registration Fee Schedule
Yes, I (we) will be attending Living Well With Huntington’s Disease in
Name(s)______________________________________________
Address:______________________________________________
_____________________________________________________
Telephone_________________Special Dietary Needs_________
Please mail registration form and payment to:
HDSA Upstate
Checks Made Payable to: HDSA
Includes buffet lunch
Registration due April 28th, 2008
$25 for 1 person,
$20 each additional person
Walk-ins are accepted; if you have any
questions or are interested in scholarships,
please call (585) 341-7400 or email
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