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Anyone living near the Indiana/Michigan state line please plan to attend this event and support theses two wonderful HDSA National Youth Alliance members as this is their first ever HD awareness and fund raiser for HD research!
Amanda & James joined the NYA and attended their first HDSA national convention last year, you might remember them not only because they both are special people....but from the wonderful pancake mixes from their families 104 year old Mill that they were selling to raise money for the NYA scholarship & research. To learn more about their family mill:
http://www.newrinkelflour.com/]
http://www.newrinkelflour.com/]
Please take a look at their FirstGiving page, below, to learn more about this event supported by the HDSA Indiana Chapter!
Thank you!
Jean
From: Amanda
Sent: Friday, February 29, 2008 5:38 PM
Subject: Please donate and help us find a cure!
Dear Family & Friends,
Please join us on May 3rd at Greenfield Mills. To raise money for research for finding a cure for Huntington's Disease (HD), a neuro-degenerative disease of the brain, genetic in nature, for which there is NO cure and NO treatment. It is ALWAYS fatal. We are hoping for a good turn out but we also know how everybody's lives can be very hectic. Because of this I have set up a way that you can still help us raise money if you can not come to the actual event, or maybe you would like to do both.
This is our first walk to raise money for research to find that elusive cure that genetically haunts our family as well as many others. You see, HD can affect each child of an HD parent. My Grandmother that has the HD gene has 5 Children and 10 biological grandchildren and 3 great grandchildren all who are 50% at risk. (There are also 3 grandchildren that are not biological but this disease will have a great impact on there lives as well.) Out of those 5 children we already know that 2 of them have the HD gene. We are asking you to help us attain this year's goal of $10,000 by donating to our Walk.
With help from all of our friends, we can help keep the research going. We know our scientists are close to finding that treatment or cure. We ask that you not give 'til it hurts; rather give 'til it feels good so that this may be the last generation to know HD. It's simple: please visit our First Giving page that we've set up at http://www.firstgiving.com/amandarinkelcurehd and give as much as you can. It takes a matter of minutes, is totally secure and you can leave a message with your donation too.
Please join us on May 3rd at Greenfield Mills. To raise money for research for finding a cure for Huntington's Disease (HD), a neuro-degenerative disease of the brain, genetic in nature, for which there is NO cure and NO treatment. It is ALWAYS fatal. We are hoping for a good turn out but we also know how everybody's lives can be very hectic. Because of this I have set up a way that you can still help us raise money if you can not come to the actual event, or maybe you would like to do both.
This is our first walk to raise money for research to find that elusive cure that genetically haunts our family as well as many others. You see, HD can affect each child of an HD parent. My Grandmother that has the HD gene has 5 Children and 10 biological grandchildren and 3 great grandchildren all who are 50% at risk. (There are also 3 grandchildren that are not biological but this disease will have a great impact on there lives as well.) Out of those 5 children we already know that 2 of them have the HD gene. We are asking you to help us attain this year's goal of $10,000 by donating to our Walk.
With help from all of our friends, we can help keep the research going. We know our scientists are close to finding that treatment or cure. We ask that you not give 'til it hurts; rather give 'til it feels good so that this may be the last generation to know HD. It's simple: please visit our First Giving page that we've set up at http://www.firstgiving.com/amandarinkelcurehd and give as much as you can. It takes a matter of minutes, is totally secure and you can leave a message with your donation too.
Our family has been blessed with friends such as you and we hope you'll be able to help us. And if you can't give at this time then we understand. We always appreciate your prayers. You will find more information about the fundraiser on the web site. We hope you'll be as inspired to give as we are to finding a cure.
Give, and it shall be given unto you; good measure, pressed down, and shaken together, and running over, shall men give into your bosom. For with the same measure that ye mete withal it shall be measured to you again. Lu 6:38
Give, and it shall be given unto you; good measure, pressed down, and shaken together, and running over, shall men give into your bosom. For with the same measure that ye mete withal it shall be measured to you again. Lu 6:38
In His Service,
Amanda Rinkel
Amanda Rinkel
Lord make me an instrument of Your peace. "Where there is hatred, let me sow love; where there is injury, pardon; where there is doubt, faith; where there is despair, hope; where there is darknes, light; and where there is sadness, joy." - Saint Francis of Assisi
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