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Anyone associated with the New England Chapter of the HDSA knows they've done an outstanding job of advocating for HD families in the New England states! Virginia Goolkasian has asked me to share the below information on an important opportunity coming up May 1st that all HD families have an opportunity to participate in. The chapter will be mailing out the attached notice in the new few weeks, but you're getting a heads up for planning purposes!
New England HD Families - Your Time Has Come to Make A Difference/Speak Out About HD May 1st!
Huntington's Disease families in the New England area are invited to join hundreds of other MS Activists at the Massachusetts State House in Boston to rally for positive changes in public policies that affect people with MS and other disabilities.
YOU can Help Represent HDSA and all New England HD Families!
YOU can Help Represent HDSA and all New England HD Families!
The National MS Society’s “ACTION DAY 2008”
In Collaboration with ADULT ONSET DISABILITY ALLIANCE [AODA]
When: Thursday, May 1, 2008 10:30 AM-1:30 PM EST
Where: Massachusetts State House Beacon Hill
RALLY IN THE “GREAT HALL”
In Collaboration with ADULT ONSET DISABILITY ALLIANCE [AODA]
When: Thursday, May 1, 2008 10:30 AM-1:30 PM EST
Where: Massachusetts State House Beacon Hill
RALLY IN THE “GREAT HALL”
Time: 11:00 AM EST
RSVP: If you can help support this legislative visit/meeting, please RSVP by April 14th
Contact: Cheryl Sullivan Huntington's Disease Liaison
Phone: 978-256-7642 or
Email: csull22@....
Please provide Cheryl with your legislative district if possible [it should be on your voter ID card].
HDSA New England Chapter - http://www.hdsa-ne.org/
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