Hi hope everyone had a chance to listen to the PatientPower show on HD today
with Dr. Jane Paulsen and Karen Milek, it was chock full of some great
questions, information and resources. So much so, the show's host promised
to schedule another show devoted to HD in the near future!
Thank you HDSA, Dr. Paulsen & Karen for making this possible and to all the
people who sent in questions or called in. They had so many which made them
declare another show on HD WILL be scheduled!!
The Host, Andrew Schorr, did an excellent job leading the interview and
asking many pertinent questions himself as he has a friend at-risk for HD.
Stay tuned to HDSA putting a link to today's show along with a link to the
transcript on their website!
Andrew wanted people to know about www.patientpower.info because they have
over 500 hours of interviews on various types of diseases and conditions
that you can search for by topic. The link to this show will also be
available soon.
Andrew also mentioned MSN has a website www.health.live.com. I checked that
out and searched for HD and the page that comes up has a bunch of stuff:
https://health.live.com/results.aspx?qu=Huntington's+Disease
That was the FASTEST 60 minutes I've had in a long time!