Please click here to download the WORD version of the NYA Survey. or

 

The survey is open to any young person living with HD. No names are required and the survey is totally OPTIONAL!

 

There are some tough questions asked on this survey that only you, as a young person living with HD, have the experience to answer.  Most of the questions address topics that have been discussed at one time or another during NYA Sensing Sessions at a national convention. The questions were put together by the NYA Adult Advisors.

 

Since this survey is 100% anonymous and there is no way to trace back to who filled out the survey, we are hoping that you will take the time to take this survey and be as open and honest as you can be.  By providing your answers to these questions you will be helping  HDSA Convention Planning committee's in determining and planning the sessions and programs that can meet the needs of young people attending the convention.  Your response to this survey will also be shared with HDSA Chapters who have, or will be establishing, HD Youth Support Groups to help them better understand your needs from a support group.

 

Again, the survey is optional.  You do not have to take it if you don not want to.  However, by taking the survey, you will be helping all young people living with HD by letting the HDSA and the HDSA Chapters/Support Groups become more aware of the type of support you need.

 

If you are a member of an HDSA Chapter or HD Support group, please provide a copy of this survey the young people in your group.  The completed survey should be printed out and mailed [without a return address] to:

 

Huntington’s Disease Society of America
505 Eighth Avenue, Suite 902
New York, N.Y. 10018
Attention: Mynelly Perez

 

If you don't mind the HDSA knowing  that you filled out the survey, or you have an email account that doesn't include your full name, you can email it to Mynelly at:  mperez@...

 

Your NYA Adult Advisors

Dave & Sue Hodgson, Jean Miller