One of the HD Video Theater links I shared yesterday was this excellent resource video:
Time: 10:00 minutes
A Practical Guide to Managing Feeding and Swallowing Difficulties in HD
Well I'm pleased to report that after seeing my message, Robi Blumenstein of High Q wrote me this morning to let me know that Andrea Fellner and Janos Vecsernyes of Polaris Pictures made this video for the Huntington Society of Canada several years ago. Shortly after the video was made Andrea and Janos moved from Canada back to Budapest, Hungary to set up a film production company which is where Robi met them. Later, when Robi got involved with Huntington's Disease through the High Q Foundation, Andrea sent him a copy of this film.
A Practical Guide to Managing Feeding and Swallowing Difficulties in HD - Video is available from HDSA:
Robi provided copies of the video to Fred Taubman at HDSA. I talked with Fred this morning and HDSA would be happy to download this video to a CD for you for training or personal purposes. Please contact either Fred Taubman X 229 or Mynelly Perez X214 at HDSA 1-212-242-1968. Fred's email is ftaubman@.... Mynelly's is mperez@.... In your request subject line, please put: Request For Video - A Practical Guide to Managing Feeding and Swallowing Difficulties in HD and provide the mailing address the video is to be sent to. HDSA will also be making this video available on their website, in view only format, in the near future.
In my reply to Robi, I also thanked Andrea and Janos for their contributions towards making this resource available to HD families and professionals who care for them. For an educational film they managed to capture, in 10 short minutes, not only the crucial elements of swallowing difficulties in HD and how one can help that person, but they did so with sensitivity to maintaining the dignity of the person with HD as well!
If you feel this educational video might be of help to a facility caring for someone with HD, or help a family with a loved one beginning to experience swallowing difficulties, please request a copy from HDSA.
My deepest appreciation goes the producers Andrea Fellner and Janos Vecsernyes, Robi and HDSA for making this video available!
Jean
Having problems with message search?
Offline 
Send Email