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The HD Lighthouse has reviewed the below document and their comments are now posted. A BIG THANK YOU to the HDL editors, Marsha Miller & Steve Ireland, for all the work they do for HD families, day after day after day!
BTW the new HDAC portal on Personal Stories on Genetic Testing for HD is up: http://www.hdac.org/testing4hd/ There are several excellent articles already posted! Remember, you can submit your own story to be included. Just send it in an email to Marsha Miller via email, marsha@...
Young People Who Undergo Predictive Testing
http://hdlighthouse.org/showUpdate.php?p_articleNumber=522
HD Lighthouse Contributing Editor's Comment
Posted to the HDL: 10-21-2007
http://hdlighthouse.org/showUpdate.php?p_articleNumber=522
HD Lighthouse Contributing Editor's Comment
Posted to the HDL: 10-21-2007
Holding your breath: Interviews with young people who have undergone
predictive genetic testing for Huntington's Disease.
JULY 2007 Rony E. Duncan, Lynn Gillam, Julian Savulescu, Robert Williamson, John G. Rogers, Martin B. Delatycki
predictive genetic testing for Huntington's Disease.
JULY 2007 Rony E. Duncan, Lynn Gillam, Julian Savulescu, Robert Williamson, John G. Rogers, Martin B. Delatycki
The HDL commentary is also attached for sharing at support groups or with families who don't have computers!
Jean
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