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The Huntington Project website http://www.huntingtonproject.org/ has a new feature, The Research Spotlight page: http://www.huntingtonproject.org/ClinicalTrials/ResearchSpotlight/tabid/64/Default.aspx
The newest addition to the Huntington Project Web Site provides a community-written overview about different HD research topics. The Huntington Project Research Spotlight was created in June 2007. We hope to highlight the results of the many current observational and treatment trials in Huntington's disease in an era when there are so many exciting initiatives taking place. We plan to update this portion of our site regularly.
Currently, only the two below articles are Spotlighted. What is good about these articles is that they are in PDF format for downloading and sharing. As the site indicates, if you would like to make a suggestion for a future article, please email the Huntington Project Webmaster: leslie.briner@...
Review of Published Article "At Risk for Huntington Disease: The PHAROS Cohort Enrolled" - Tuesday, July 10, 2007
http://www.huntingtonproject.org/Portals/0/PHAROS%20article_final.pdf
Among the 150,000 or so individuals in the United States and Canada who are at risk for Huntington disease (HD), only a fraction have chosen to undergo genetic testing that would tell them if, in fact, they have the HD gene. Since people who have decided against genetic testing make up the majority of people at risk for HD, a group of Huntington Study Group investigators reasoned that studying this group might provide critical information about the earliest indicators of the disease. Go to above URL for full article.
Among the 150,000 or so individuals in the United States and Canada who are at risk for Huntington disease (HD), only a fraction have chosen to undergo genetic testing that would tell them if, in fact, they have the HD gene. Since people who have decided against genetic testing make up the majority of people at risk for HD, a group of Huntington Study Group investigators reasoned that studying this group might provide critical information about the earliest indicators of the disease. Go to above URL for full article.
Review of Published Article "Preparing for Preventive Clinical Trials: The Predict-HD Study" - Wednesday, June 20, 2007
http://www.huntingtonproject.org/Portals/0/Predict%20article_rev.pdf
In the first published report emanating from The Predict-HD study, several markers of HD were shown to appear long before an individual would expect to be diagnosed. More importantly, since the markers varied in measurable and predictable ways prior to diagnosis, they may prove useful in upcoming clinical trials to determine whether experimental treatments can slow the progression of the disease. Go to above URL for full article.
In the first published report emanating from The Predict-HD study, several markers of HD were shown to appear long before an individual would expect to be diagnosed. More importantly, since the markers varied in measurable and predictable ways prior to diagnosis, they may prove useful in upcoming clinical trials to determine whether experimental treatments can slow the progression of the disease. Go to above URL for full article.
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