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Just a reminder about the JHD Retreat! Phil is encouraging all families to let him know ASAP if you need a registration package!
Juvenile Huntington’s Disease!
2007 JHD Arizona Retreat
June 1-3
2007 JHD Arizona Retreat
June 1-3
See attached for all the details. Please share with JHD families who don't have computers!
Come participate and meet other families dealing with JHD in the peaceful and casual setting of Prescott, Arizona, located in the cool pines just 1 ½ hours north of Phoenix. This is the retreat’s 8th successful year.
This year we are privileged to have Dr. Jane S. Paulsen, Ph.D., Professor of Psychiatry, Neurology and Psychology at the Carver College of Medicine at the University of Iowa and Helen Brewer, Juvenile Huntington’s Disease Care Advisor for the Huntington’s Disease Association in London, England in attendance. After visiting our retreat two years ago and listening to the tearful needs and concerns of 6 families living with JHD, Dr. Paulsen decided to form a collaborative group with clinicians and researchers from the European Huntington’s Disease Network. This new group will allow those interested in JHD to combine their efforts, expand mutual networking and raise awareness of the many unmet needs of families and children so that working together, the quality of life for everyone living with JHD can be improved.
Rooms are very comfortable and are like motel rooms with a double and since bed. Each room also has a private bath and balcony or porch with a beautiful view. If your child requires a special diet just let us know. There is no cost for parents and their JHD child, except your transportation to get here. However, the total cost of the retreat is a very reasonable $100 for each person, which includes 2 nights and 7 meals so if you are able to pay any amount, please let me know so the money can be used to help other families
If interested, please e-mail Phil Hardt immediately at phardt1@... or, if you have questions, please call him at 602-309-3118.
Formal registration forms will be mailed at a later date.
This retreat is organized and conducted by the HDSA Arizona Affiliate!
Arizona Affiliate
P.O. box 7666
Phoenix, AZ 85011
Arizona Affiliate
P.O. box 7666
Phoenix, AZ 85011
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