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Lynn,
I'm very sorry that you have been diagnosed with HD. This group is very underdeveloped and because of that I am sending you two other links that I would like you to check out and join. They are wonderful groups and I know you will find them very helpful. The HD community on yahoo is very much like family to me and I am sure it will become like family to you as well.
My name is Rhonda and I am AtRisk for HD. I am a 36 yr. old single mother of two beautiful children also AtRisk, and caregiver for both parents. My mother has HD and my father has heart disease and chronic emphysema.
This first group is for those AtRisk, but also has many members who have been diagnosed positive.
This second group is for HD families.
Please be sure to join them at the very least the AtRisk group will be great for you. Also if there is anything I can do for you do not hesitate to ask. I sent an invite to you to let me add you to Yahoo messenger. My yahoo ID is sawedoffrunt69. If you do not have yahoo messenger I strongly suggest you download it as many of us in the HD community do have it and you can almost always find someone online 24/7 if you need to talk.
Love and prayers,
Rhonda Holscher
513-528-5827
513-257-9609
685 Woodthrush Dr.
Cincinnati, OH 45244
-------Original Message-------
Date: 09/01/05 20:15:16
Subject: [HDMeetings] new member
Hi everyone!! Just wanted to introduce myself.. My name is Lynn, I am
23 years old and have been diagnosed with huntington's disease in July
of 2004. I've grown up with it all of my life, my mother died
christmas day, 2003, my grandfather had it, deceased, an uncle,
deceased. Others in my family who have it and are alive besides me
are my brother, 2 uncles, 1 aunt, and 11 of my cousins. There are many
others, but I can't remember right now. I am the only one who is
nonsymptomatic so far.
Lynn
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