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PREDICT HD Recruiting Gene Negative Individuals   Message List  
Reply | Forward Message #160 of 447 |
There are still openings in this study: PREDICT-HD: Neurobiological Predictors of Huntington’s Disease. Please see below if you're interested and/or share the attached with others in your support groups, etc.!
Thank you!
Jean
 
 
Sent: Wednesday, October 25, 2006 11:58 AM
Subject: GENE NEGATIVE INDIVIDUALS NEEDED!

I am attaching an IRB approved announcement that may help us reach our target for the PREDICT-HD study (currently open to individuals who have tested gene negative). 
 
The PREDICT-HD study under the direction of Dr. Jane Paulsen at the University of Iowa is currently seeking additional gene negative participants (CAG <30 repeats). The study will help to define the earliest changes in HD so that knowledge of how HD develops can inform treatments to slow disease progression or delay disease onset.
 
Participants, 18 years of age and older, will be evaluated once a year for a minimum of four years. Evaluation includes neuropsychological testing and MRI scans. Compensation is available to study participants.
For more information about participating please contact one of the University of Iowa’s PREDICT-HD recruitment team members who can assist in facilitating enrollment at one of our 32 research sites:

Elizabeth Penziner      319-353-4292    elizabeth-penziner@...
Stacie Vik 319-353-3716 stacie-vik@...
 
You may also visit the PREDICT-HD Link on the Huntington Study Group website: http://www.huntington-study-group.org/
for a full list of participating sites and contact information or call the HSG toll-free at 800-487-7671.
 
All the best,
Elizabeth
 
Elizabeth Penziner, MA, MPH
The University of Iowa
Roy J. and Lucille A. Carver College of Medicine
2-323 Medical Education Building
Iowa City, IA 52242
Email: elizabeth-penziner@...
 


Sat Oct 28, 2006 6:26 pm

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Attachment
PREDICT Recruitment (Hunt Dis).doc
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application/msword
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Message #160 of 447 |
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There are still openings in this study: PREDICT-HD: Neurobiological Predictors of Huntington's Disease. Please see below if you're interested and/or share the...
Jean E. Miller
hdcureit
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Oct 29, 2006
12:27 am
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