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HDMeetings · HDMeetings(Huntington Disease)

Group Information

  • Members: 26
  • Category: Health Care
  • Founded: Mar 9, 2005
  • Language: English
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Description

This group has been created for anyone and everyone who has any knowledge of, contact with, or involved with Huntingtons Disease in anyway. This group was set up for the intention of having open on-line chats for support, questions, and general conversations regarding HD.

The picture to the right is my grandma left, me (AtRisk) in the middle, and my mom (pHD) right on mothers day 2005. My mom inherited this awful disease from her father and from there we are not sure were it came from, but she has many siblings with the disease as she has a large family. I have one brother and between he and I we have 5 children. We are all AtRisk. I hope that you find this group a helpful place for you please check out the links section as there are many wonderful groups available out there to offer love, support, prayers, information, guidance, whatever you need. And if you do not have Yahoo messenger I strongly advise you download it because there is someone online pretty much 24/7 from one of these groups that you can talk to. May God Bless you and help you through your difficult journey.

Most Recent Messages

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New On-Line Suport Group, HD-SOUL, For Young-Adult Carers
This message is to make you aware of a new on-line support group, "HD-SOUL" [Significant Others United in Love], that is specifically for young-adults [18 to
Posted - Mon Oct 5, 2009 4:22 pm
Jean E. Miller
hdcureit
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HDSA Marsha Miller's 9-2-09 Interview with Dr. Jan Nolta on upcoming
Marsha Miller's recent interview with Dr. Jan Nolta is available on HDSA's website: http://www.hdsa.org/research/news/nolta.html. See excerpts below. Marsha
Posted - Wed Sep 9, 2009 12:36 pm
Jean E. Miller
hdcureit
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Genetics & IVF Institute is giving up to 25% discount for PGD proced
This could be great news for some HD families: Patients who have a completed PGD procedure at GIVF before December 31, 2009 may save up to $1,250. Patients
Posted - Wed Sep 2, 2009 3:31 pm
Jean E. Miller
hdcureit
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Registration is open for 3rd Annual HD Clinical Research Symposium N
I attended this event last year in St. Petersburg and it was a really informative day plus a great opportunity to meet other HD families from Florida. In a
Posted - Fri Aug 7, 2009 10:16 pm
Jean E. Miller
hdcureit
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8-15-09 Dallas "Living With HD - A Guide for Families" Education Day
For those of you living in Texas, this FREE HD Educational Event looks to be a good one, plus its an opportunity for people from Huntington's Disease families
Posted - Fri Aug 7, 2009 9:01 pm
Jean E. Miller
hdcureit
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 5 5 1 7 1 2 2 2 1
2008 16 13 7 12 7 3 11 6 8 3 7
2007 10 6 14 11 18 14 13 12 7 22 8 8
2006 5 6 16 11 18 15 12 4 7 10 3 17
2005 2 1 2 4 3 1 23 9 5 7
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