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HDGC · Hereditary Diffuse Gastric Cancer

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Description

Two and a half years ago I started this group for people affected by Hereditary Diffuse Gastric Cancer (HDGC) - patients, families, caregivers and medical professionals. I hoped, but never thought, that it would turn into such a large (118 members at last count!), active, caring group of people!

If you or someone you know has hereditary gastric cancer, please feel free to join. Just request approval with a sentence or two about why you would like to (this has been 99% effective in keeping spammers out).

Please note that the views and information shared in this group are those of the people posting only and should not be considered medical recommendations or advice. Even medical professionals joining the discussion are doing so unofficially. Members who are patients or people at risk for HDGC should always consult their physicians (hopefully ones with substantial experience with this disease) before making any decisions about their medical care.

Best wishes to everyone,
Amy (adfdl)

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Re: CBS Early Show HDGC Segment postponed again!
Samantha, I had a series of 8 iron infusions also last year.  I have my iron tested along with other vitamins, minerals, and counts every 3-6 months.  My
Posted - Sun Oct 11, 2009 1:59 am
Debra Smith
dgsmith70755
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Re: CBS Early Show HDGC Segment postponed again!
Hi Sam... Actually my last series was 2 1/2 years ago and before that 4 years...I was feeling really low and my ferritan level was 15...Not terrible but my
Posted - Mon Oct 5, 2009 2:45 am
Chris Lyons
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Re: CBS Early Show HDGC Segment postponed again!
Chris, How often do you need to get your iron infusions? I had a series of 8 infusions last July, and am feeling anemic again.... Samantha Sent from my Verizon
Posted - Mon Oct 5, 2009 12:58 am
schlgrl02@...
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Re: CBS Early Show HDGC Segment postponed again!
Oh No!!!! Well it will air eventually I am sure...There is probably something going on about the California wildfires tomorrow. Its really hard to predict
Posted - Mon Oct 5, 2009 12:52 am
Chris Lyons
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CBS Early Show HDGC Segment postponed again!
Sorry, but seems we've been bumped again. I'm learning a lot about the media industry, and one thing I know for certain . . . it is quite unpredictable!
Posted - Mon Oct 5, 2009 12:46 am
kecs57
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 110 115 118 34 38 7 5 12 72 17
2008 23 15 31 29 131 86 59 72 214 108 77 61
2007 7 45 70 16 29 50 33 18 18 20 2 10
2006 36 29 18 37 62 30 36 22 9

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