Hi,everyone!! We never keep in touch any longer.I am doing well and just going into my 4th year remission!!!!!! Nearly NO hair now.What I have sticks up or...
Freeda, Good to hear that you are doing well. I am also going into my fourth year!!! I wanted to ask if any of you have experienced any skin related changes...
Hi Freeda and everyone! I wonder that myself why conversation and info fell asleep almost two years ago on this site. Freeda, good thing with the wig, but what...
Hi,Luis, I can't help you because I am Scandanavian descent and British isles.I have horrible skin to begin with.Never could be in the sun long and doc says...
Freeda, do you remember the email with all the info I sent you some month ago for the Leukemia and Lymphoma Society? I checked that out for you back then and...
Oh MY GOSH!! Sylvia I don't remember that!! What was going on in my head at that time!! I have my doctor bills down pretty good but it goes up gradually...
Freeda, I am going to search for the original email I sent to you and re-send it so you can take a look at it. I can certainly understand that you must have...
Sylvia,I will be 64 in July. I wonder if they have us going so seldom because of no insurance? Oh,Maybe you do have. I don't get lab work done unless I am at...
Hi All, Its good to see some activity on the group. I have a question for you all. My mum's been CML patient for last 9 years. Started Gleevec nearly 4 years...
Hi Madhulika, I'm sorry to hear about your mother. Why is she not in one of the trials for Gleevec resistant patients? There are two very promising new drugs...
I hope I am right, but according to my onc, one does not switch phases once it is determined what kind of leukemia one has. If she has been on Gleevec for so...
... phases once it is determined what kind of leukemia one has. If she has been on Gleevec for so long, and it is working, she must be in remission. Is...
Tracey: thank you for your reply, I am sorry to be wrong, but how do you know this? I am very confused now, since my onc told me that one does not switch...
Hi Silvia, Well I know this because I've seen many patients return to chronic phase after being in the accelerated phase or even blast phase. This is the goal...
Freeda, my blood work so far turned out pretty good, no need to check more often. I am doing good on the Gleevec with hardly any side effects, but that took...
Tracey, thank you very much for your information. Are you in the medical field? As far as the phases go, I always believed that without treatment a patient...
Hi Silvia, I'm not sure what you're talking about. I don't recall saying that we couldn't stay in one phase with treatment. The goal is exactly that, to halt...
Sylvia,it's people like us who make the medical care look pretty slack in our country."No insurance" can mean "no life".I have been so fortunate in getting my...
This new discussion is really getting me thinking!! I need to spend time with my onc and ask questions too.I know once in the very beginning of my diagnosis my...
Hi Silvia, Thanks for the info on AMN107 and Dasatinib. My mom's in India and I live in Singapore. And we both checked. There are no trials going on in either...
Hi Madhulika, I believe that there are clinical trials in Singapore and possibly in India as well for these new drugs. I would encourage you to contact Anjana...
Dear Tracey, Thanks a lot. I spoke to Anjana. There are trials in Singapore. But my mum won't be eligible since the they are looking at patients who are...
Tracey: indeed you have confused me. But maybe I did not explain things in a very understandable way since english is my second language. I apologize. I...
Madhulika, I do hope there is help out there!! Did this come on suddenly after taking Gleevec? And I wonder why she wasn't given higher dosage right away?? The...
... phases once it is determined what kind of leukemia one has. If she has been on Gleevec for so long, and it is working, she must be in remission. Is...
@telephonics: yes, I think I might have been mistaken, and thanks to Tracey's info I got to think about it some more. However, I will see my onc next week...
Freeda, My mom's repeat test came back worse. Here blast %age is up to 26%. Her doctor has classified it as blast stage. I thought blast stage was more than...
FDA Prioritizes Bristol Drug Cancer treatment Dasatinib will receive a faster review from U.S. regulators. March 7, 2006 Bristol-Myers Squibb said Tuesday that...
Most read Oncology news in the past 7 days Papers and articles, pertaining to Oncology, most read by your colleagues in the past 7 days Cetuximab and...
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