CMLHope.Com Since the launch of CMLHope.Com has been delayed due to the files being lost in a computer crash, we will have opened registration for some of our...
Hello Folks, EVERYTHING YOU HAVE EVER WANTED TO KNOW ABOUT BASIC CELL BIOLOGY AND QUANTITATIVE PCR TESTING BUT WERE AFRAID TO ASK! I have been very busy...
HI, Please send me any informatio you may have on the up and comming meeting at Montreal. Thanks Leroy Clayton 700 E Lake DR. #98 orange Ca 92866. I will...
I was diagnosed with cml exactly three years ago today and I find the fatigue is worse now than before.I have some days where I have to lie down for a couple...
Hello Yes I have the fatigue also. Luckily I can rest when I want to and my husband understands. Usually once a day but sometimes 2 I get naps. Take care...
Freeda, I had alot of trouble with fatique in the beginning, but after a while I got better and better. I am not trying to do all the housework at once or all...
Freeda, I was experiencing some fatigue because of a low count red blood cells (how is yours?). My primary care physician suggested eating red meat, which I...
Thanks to all of you who responded to my post.I do eat red meat and beef liver once a week.Maybe I need something else.I don't know about my red blood cells.I...
Freeda--one of the effects of CLM is reduced production of red blood ceels. In addition the hemoglobin content is also diminished. Red blood cells and...
Thanks so much for this added advice.I will talk to my onc about that.I don't have an appointment til Mar but I think I should call him before that as this...
I understand that Procrit is not appropriate for CML patients. Luis Freeda Berry <no1freeda@...> wrote: Thanks so much for this added advice.I will talk...
Freeda, I am so sorry u are so very tired--I to get very tired--but am taking high dosage of iron and that seems to be helping some- My onc. Phys. assistant...
HI Freeda - I have the GIST and am on Gleevec 600mg per day. I'm having the same signs of fatigue due to the Gleevec. I was getting shots of Procrit, then...
I was surprised to read that procrit may not be good for all cml'ers.I had some hope when I read telephonics reply and had hopes.Thanks,though,telephonics!!!...
Has anyone heard from the lady (I am sorry to say I can't remember her name) that we sent the cheery cards to? She was getting ready to have bone marrow...
Freeda, Procrit IS good for CML'ers to have. When it was first approved by the FDA it was not approved for use in Myeloid cancers, but is able to be prescribed...
Yes,I am beginning to believe the iron might just be the answer..but will check with the doc about the others in case they are an option. Thanks to everyone!! ...
Thanks,Trisha,I will take all this advice and present it to my doctor.I have NO health insurance and haven't had for just over a year when I lost my job.So...
CMLHope.Com A Global Community For CML http://cmlhope.com Our new CML web site is now open. It will provide a central location where you can access all of the...
Since we now have a number of new groups I would like to mention that I hope each of you will help us to encourage others to join our groups. In addition to...
With the launch of the new site CMLHope.Com we will now start to expand the international network of local CML meetings http://cml.meetup.com The new system...
CMLHope.Com can now set up local Meetups without first having a local organizer. If you would like us to set up a local CML support group meeting for your...
I would like to set up a group in North Suburban Chicago. We never seem to get anyone to sign up. Ellen Abell [Non-text portions of this message have been...
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