I started taking Glivec on 01/31/01 as part of the "106" clinical study. So far, nothing much to report, but I will post more here soon. P.S. I started this...
Erick
fossileyesd@...
Feb 5, 2001 1:33 am
5
Hi Erick Just to introduce myself but I am sure you have come across me on the European CML website. I finally started Glivec after a long wait on 6th Dec....
erees@...
Feb 5, 2001 12:58 pm
6
Congratulations Erick, I wish you all the best in your treatment. Jerry...
jerry@...
Feb 5, 2001 2:37 pm
7
Hi Elizabeth Thanks for joining our Glivec discussion group. I do remember you from the European CML website @ http://www.newcmldrug.com/uksupportgroup/ and...
Erick
fossileyesd@...
Feb 5, 2001 10:00 pm
8
... Thank you Jerry. I am very optimistic about Glivec being "just what the doctor ordered" for me (even tho I did have to go out and find the trial info for...
Erick
fossileyesd@...
Feb 5, 2001 10:20 pm
9
I had my one week checkup today, all is fine, "counts" are good, I have no side effects at all. I stopped all my other drugs (hydroxyurea, allopurinal and...
Erick
fossileyesd@...
Feb 7, 2001 7:21 am
10
WT1 trials will be starting at the Hammersmith in London soon and will involve patients with advanced leukaemias for Phase 1. More info on WT1 on...
erees@...
Feb 7, 2001 5:37 pm
11
Greetings to all list members. I am a CML patient, diagnosed in June of 2000. 3 months ago I entered a clinical trial for STI571 (Glivec) at MD Anderson...
Dane Tessler
dane714@...
Feb 8, 2001 9:23 pm
13
Greetings Dane, Welcome to the Glivec discussion group! I see that you are one of the brave ones that accepted INF as a treatment, but that unfortunately it...
Erick
fossileyesd@...
Feb 9, 2001 7:06 am
14
Hello everyone, and welcome to everyone! I encourage all members to post a introductory message telling a little something about yourselves, if you want to....
Erick
fossileyesd@...
Feb 9, 2001 8:03 am
15
Hello Erik, et. al. I only had a two day break of medication when switching from INF to Glivec...so it took a while for the side effects of the former to wear...
Dane Tessler
dane714@...
Feb 9, 2001 12:04 pm
16
Hi all, Finally back on line after week with the flu. Have just completed my second week on Glivec. I learnt today why they say to stay vertical for thirty...
dynamics@...
Feb 9, 2001 2:01 pm
17
Hi all, We're new to this site. Jill, my wife, has been on Glivec (Still think of it as STI) since July 2000. She has had a difficult time of it well before we...
richardlj@...
Feb 9, 2001 2:13 pm
18
... I stopped my other meds, (hydrea, allopurinal and procrit,) the day I started taking Glivec. I reduced my hydrea intake a couple of days before starting,...
Erick
fossileyesd@...
Feb 9, 2001 10:48 pm
19
... Hello Beau, and welcome to our discussion Group. I believe that you and I have chatted together in the CML group chat room - it is good to "see" you again...
Erick
fossileyesd@...
Feb 9, 2001 11:24 pm
20
... Hello Richard and Jill, and welcome to our discussion group! Everybody: Richard and Jill are the couple that told me about the Glivec clinical study in my...
Erick
fossileyesd@...
Feb 9, 2001 11:53 pm
21
Hello everyone Just a few hints on how to deal with the Glivec side effects. The only one and wonderful Brian Druker recommended using Preparation H under the...
erees@...
Feb 10, 2001 1:56 pm
22
Here's a good description of Glivec (STI571) http://healthsurfing.com/health/2001/02/09 They have done a good job with this report, it is well worth visiting ...
Erick
fossileyesd@...
Feb 13, 2001 12:42 pm
23
In case anyone doesn't already know it: Dr. Druker is featured in the February 19, 2001 issue of People Magazine, currently on newsstands everywhere. The title...
Erick
fossileyesd@...
Feb 15, 2001 8:03 am
24
A promising possible option in development - for when Glivec alone is not enough: Article about Leptomycin B used together with STI-571, Copley News Service, ...
Erick
fossileyesd@...
Feb 15, 2001 8:11 am
26
Has anyone had a FISH result of 0%? My results keep coming back with a small percentage - 2.5% at 6mo BMB, 7.5% at 9mo BMB - I know the "normal" range is 0-10%...
alobc@...
Feb 15, 2001 1:28 pm
27
Interesting you should mention this. I have noticed changes on my skin (upper arm) and itch (thigh) and all the Drs I mention this to seem de discard it as...
alobc@...
Feb 15, 2001 1:39 pm
28
... ==================================================================== My Jill has had 0% PH since the 11th week after starting Glivec. All FISH tests after...
richardlj@...
Feb 15, 2001 1:59 pm
29
Linda Bartlett from Cody, WY here. Dxed Oct 97, Been on STI571 (Glivec) since Aug 99. Zero PH+ since Jan. 2000. Member of UCLA Phase One Trial, started at...
lbartlt@...
Feb 16, 2001 3:23 pm
30
I too have thyroid problems and have had high triglycerides since I was diagnosed in Oct 97. I've been on two triglyceride meds, one made me extremely ill and...
lbartlt@...
Feb 16, 2001 3:34 pm
31
Hello Everyone, Although I recognize alot of your emails from the CML group I thought I should introduce myself. My name is Cathy Cloin, dxd 9/90, I was on...
CathyCloin1@...
Feb 16, 2001 3:42 pm
32
Hi Linda, Boy your trip sounds wonderful. Have a great time! I was interested in what you had to say about triglycerides as mine have been mildly elevated for...
Dorothy Emery
doemery@...
Feb 16, 2001 5:38 pm
34
My name is Sally. I joined the group as gramssally. My finace, David, has had cml for over 10 years. Initially, he was on hydrea and busulfan. He then was...
dholaday@...
Feb 18, 2001 6:26 pm
35
Hello Sally, I've sent a reply to you "offline", but I just wanted to say here that I hope some of the group members will have some helpful advice for you and...
Erick
fossileyesd@...
Feb 19, 2001 8:31 am
36
... <snipped> I have been corrected about my statement that CML leads to an increased risk of skin cancers. I made the mistake of passing on what I believed...
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