We now have 124 cities where people have signed up for the local CML support group meetings. I wanted to encourage more of you to sign up for local meetings...
In a message dated 10/3/2003 1:08:10 AM Eastern Daylight Time, robs@... writes: http://cml.meetup.com Ok, am I stupid or what? I have not been able to...
Hi Pete, There is a recent good article on how they do these harvests. Did you want me to send you a copy of this article from the journal, Leukemia? If so,...
Hello all, I'd like to introduce myself and ask a couple of questions here if I may please. I'm the mother of a 7 year old son with Down syndrome and a general...
Hello, I'm new to the group and am writing to find out if anyone has any information on using Gleevec to treat non-gist stomach cancer. My father has been...
Hi Mary, I have to admit that I haven't researched this very much but I do know that when Gleevec is taken orally, as it is now, it doesn't pass the blood-...
... From: Tracey Feldman To: Gleevec@yahoogroups.com Sent: Tuesday, October 07, 2003 11:16 PM Subject: Re: [Gleevec] AD and Gleevec Hi Mary, I have to admit...
... Is it really that simple? To just use it anyway? How do you get a doctor to prescribe it? Do you have to find a doc that's willing to try it? Or is it a...
I do not know what has led up to this question - missed some emails - but, in my case, it was never determined I had a GIST, but it wasn't determined that I...
You have to see if the cancer is sensitive to either c-kit, bcr/abl or PDGF as these are the enzymes that Gleevec inhibits. If the cancer is not sensitive to...
a doctor can prescribe even if it is for a non approved use.my experience was that doctors are very conservative. they are afraid and must be pushed [Non-text...
A doctor can write off-label prescriptions for any FDA-approved drug. However, the insurance company could refuse to cover the cost of the drug, given it's...
Hello I want to introduce my daughter (Hunter ) & me (Nicole). Our story began in 99, Hunter was diagnosed with stage 4 Neuroblastoma, she was 3. They gave...
Hi Nicole and Hunter, Welcome to the group. I'm sorry to hear about the struggles you've endured. One thing I don't understand is why the doctor took Hunter ...
Getting a prescription is one thing, getting an insurance company or government agency to pay for a drug that is not approved for a specific use is entirely...
... Hunter ... after ... improvement. ... The problem is that it is expermental and to be able to stay on it you have to cont. to show improvement. Plus the...
she needs good thoughts and prayers...so I am sharing this...pls pass along! Thx :o) http://caringbridge.org/fl/katia_leukemiapage/ www.lightthenight.org ...
Dear Nicole: I have been on Gleevec since September of 2001 and I have been blessed for I never experienced any pain or sickness other than a slight memory...
Hi Mark, What was the reason for reducing the dose? It has been shown that a 200 mg dose has no curative effect and could cause resistance to the drug. It is...
Hi Nicole, You may be refering to Tylonal when you say you heard that we can't take OTC pain killers with Gleevec. The reason for this is because the Tylonal...
My prayers go out to you. Thank youfor the advice. It's really no big deal for her to take the pills she only has to take 3 of them SHOOT thats nothing all ...
Hi Nicole, I would recommend that Hunter take the pills after supper not before bed. The reason is because they can be a little hard on the stomach but if the...
Gleevec was developed as a treatment for certain types of cancer. It is very expensive. I do not think there is any research about Gleevec and diabetes....
Zavie: Yes I am still in CCR but working on having the mini-transplant performed. I chose to go to two pills a day for the high cost of the Gleevec. ...
I told Hunter about having to drink 8oz. with the pills . She was not thrilled about that. Now don't get me wrong she drinks water. She has a water bottle with...
Hi Nicole, Sounds like a great plan. The only food known to interact with Gleevec is grapefruit. Of course alcohol should also be avoided because of the...
Of course alcohol should also be avoided ... an ... Well not that I know of but maybe we both will have some problems before this is all over...lol... thanks...
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