Hi, my name is Jamie and I'm 22 years old. I'm new to this group and I'm not even sure if this is where I should be. My dad was recently diagnosed with...
Diagnosed with CML 1992. Autograft in 1993 not successful. On Interferon since and counts have been stable until about 1 year ago. Increased slightly and...
Hi Everyone, My friend was just diagnosed with "carcinoid cancer?" She has many tumors, and the doctor said that if she qualifies for the injection treatment,...
The drug company Novartis has a program that will provide free Gleevec if a patient has no insurance and meets certain income and asset requirements. The phone...
I am short on time, but I will tell you this, It probably WILL work. There are several (many), who are on gleevec post relapse after SCT, and it is working...
Hi all! My name is Erica Friedman, and I'm a researcher by trade. I've been asked to look into CML and Gleevec related communities and do things like determine...
Erica, As I asked on the CML lists you posted to, Who are you doing this for, what will you do with the information, and how are you handling privacy issues? ...
... I think that there is a VERY GOOD chance that it will work! Most of the people in the clinical trials had failed on interferon and were very sucessful on ...
Hi folks! I am the one whose husband was the "slow responder" to Gleevec. The doctor increased his dosage from 400mg to 600mg. At first it was still inching...
What reason is your doc giving you when he says "it will not work"? Are you seeing a cml and gleevec specialist? If not, I would strongly encourage you to...
Who is the consultant and what are his/her credentials in the field of CML and Gleevec? What does he suggest will work? Who advised you to go on Gleevec? You...
Thea, There is a great site for your friend www.carcinoid.org My husband was diagnosed with Carcinoid by two different Hospitals and once his primary tumor was...
... As I have been banned from the CML group (apparently for not answering your question, but I wasn't able to log on again until now) I'll answer this here. I...
I believe you were banned from the two CML lists because your so-called "introduction" did nothing to identify who you are, yet you did say you intended to use...
This isn't a "disease community." These are real people, individuals. And a pretty damn savvy group of people, too. We are not here to serve the needs of every...
It does't itch. It's red blotches beneath the skin. Dr. Oblon says it is the "rash" and to watch it closely. If it starts to blister, stop the Gleevec and...
Thank you for responding to my question. I appreciate the help. My dad has an appointment with the VA to see the oncologist the second week of May. He was told...
... I'm aware of that. And we're really not trying to hurt anyone or take advantage. Since it's obvious that you really want to see me as some kind of...
... Erica, I don't have a problem answering your questions as long as there are not too many. Leila ... __________________________________________________ Do...
Hello, I think I introduced myself before, I am Aubrey Ghen, diagnosed with CML Nov. 20, 2001. I am a unemployed Software Engineer ever since (not because CML,...
Aubrey you might want to also join the CML group at http://groups.yahoo.com/group/cml Rob ... From: Aubrey Ghen To: Gleevec@yahoogroups.com Sent: Saturday,...
I have never heard of the Gleevec rash being life threatening. Has anyone heard that before? Rob ... From: orrkids To: Gleevec@yahoogroups.com Sent: Friday,...
In a message dated 5/3/02 11:23:07 AM Eastern Daylight Time, ... I checked out this site, and it is great! Thank you so much for the info - I called her first...
I have been takinng Gleevec since June 2001- Rash started in September. I tried everything I could think of and everything I was informed about, until ...
Youre welcome Thea! Email me anytime at theleccas2@... I wish you and your friend well! Diane thea7441@... wrote: In a message dated 5/3/02 11:23:07...
I have heard that Gleevec is on the VA national formulary list so that each VA site is required to make it available to VA physicians who want to prescribe it...
A few weeks ago when I was on antibiotics, I received an e-mail from someone on one of the many lists, asking me about my response to the sulfa type drug I was...
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