Hi everyone, Best wishes for a HAPPY and HEALTHY New Year. After catching up on over 200 emails, I found 3 new Zero Club members. I will recognize them in...
I have also been experiencing very bad bone pain in my shins. It doesn't increase the pain to walk but they are extremely sensitive to touch (even my pants...
Hi Kristen How long have you been on gleevec? I started getting the bone pains (especially in my shins as well) and incredible swelling in my ankles and face....
Hello everyone, Happy new year to you all My name is Hadeel,I'm a jordanian woman and a relaive to a CML patient.My father in low was newly diagnosed of having...
Kristin, I have been on Gleevec (400 mg) since Nov. 7 and experienced the same leg pain as you. At times it was excruciating as well as debilitating. It got ...
Coale, Stacy
scoale@...
Jan 2, 2002 5:23 pm
1525
YAHOO!!! YIPPEE!!! Number 185 on my list. Zavie ... From: "Markus Euskirchen" <m@...> To: "Zavie Miller" <zmiller@...> Sent: December/27/ 2001...
There is an international patient assistance program for Gleevec operated by the Max Foundation at http://www.themaxfoundation.org/english/glivecUS.shtml which...
In a message dated 1/2/02 1:26:57 PM EST, maaitahhadeel@... writes: << thanks a lot Hadeel >> Hello Hadeel, My name is Doris. I have cml also. I'm so...
Hi Everyone! I just wanted to introduce myself. I'm really looking forward to hearing from all of you! I was diagnosed with CML November 1993, bone marrow...
Jeanne: Hello, and welcome to the group! Sorry you are here, but it's a great group! My son, Douglas is also being treated at the University of Minnesota....
Hi Jeanne, I'm sorry that you are having a difficult time at the moment, but it is good to hear from someone who is a long term survivor. I was dx'ed on the...
Jeanne, You have been through an awful lot since 1993 and I'm so sorry to hear your CML has returned. I have been on Gleevec since Aug. 99 and after all you...
Hi Jeanne Sorry you have to be here. You have come to the best group. The CML@yahoogroups.com is a great group too. Richard R is a doctor and has alot of...
Beau, Are you at all close to the fires they've been reporting in NSW? I hope you and all your family will be safe and that this devstating fire will be ...
In a message dated 1/3/02 0:50:43 AM EST, njeanneb@... writes: << Anyway, thanks for being here. Jeanne ... Hi Jeanne, So sorry you have to be here,...
Are there any African-American or anyone else who has noticed that the melony(skin pigment)has changed to a light tone? If so, what has your Dr. said about...
In a message dated 1/3/02 7:24:26 PM EST, mskiara@... writes: << Are there any African-American or anyone else who has noticed that the melony(skin >> I...
I have heard of several dark-skinned patients who have noticed a lightening of their skin while taking Gleevec. Also, I am Caucasian but I have also noticed...
Hi l'm Tom in Canada l've had my forehead get all blothed l look like a holstein cow just my forehead though l'm not sure when it changed l thought it might...
Hi Doris, I read your message to Jeanne. I am a new member to the gleevec group and I am so thankful to have friends that have been there and done that. I...
Hi Darlene, Fortunately in the area where I live there have been no major fires. What fires there have been, the fire brigade people have been able to get...
Hi Beau, I hope you get a good report from your bma, I also had one in Dec and am awaiting the results. I also took Hydrea and also Inteferron & Alpha C. I...
Hi Dot, Yes, I'm waiting for the results with a deal of expectation. Have been 5% PH+ at the last two so, am expecting zero this time. My dr has said, if it is...
In a message dated 1/3/02 11:52:29 PM EST, cfhdbhhuff@... writes: << Dot >> Hi Dot, I was on interferon for 11/2 years before gleevec. A lot of people ...
Dot, I've been on Gleevec since Aug, 99. I've had a rash the entire time, but it hadn't itched much until recently. A few days ago I went to WalMart and...
Those are both wonderful products for the rash... There is also an aveeno anti-itch lotion that works wonderfully. Stops the itch immediately! I also like...
All this talk about rashes is interesting. I have no visible rash but I've had a lot of itching: scalp, neck, back, soles of my feet, ankles etc. Also ...
My Dad was diagnosed with CML in,or around 1995--He was too old at the time (63) to even be considered for BMT, so he has been on Chemo treatment since then....
Darlene, Thanks for the message! Your itching sounds alot like mine. Why did you come off of the Gleevec for a while? Have you had a bone marrow biopsy...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
