Well, since this drug is so new, and still being tested pre-FDA approval . . . and since there are so many people with so many questions about Glivec . . . and...
Erick Swearengin
fossileyesd@...
Jan 14, 2001 10:40 am
2
As I find them, I'll post the URLs of sites with info about Glivec, in the "Links" section on the "Main" page. Feel free to post your relevant links there...
Erick Swearengin
fossileyesd@...
Jan 14, 2001 10:56 am
3
Heruga63, has joined your group. Thanks for the chat Erik. Tracey, dxd 12/98 600mg Glivec 90% PH- The Netherlands...
Tracey
houwling@...
Jan 30, 2001 7:11 am
4
I started taking Glivec on 01/31/01 as part of the "106" clinical study. So far, nothing much to report, but I will post more here soon. P.S. I started this...
Erick
fossileyesd@...
Feb 5, 2001 1:33 am
5
Hi Erick Just to introduce myself but I am sure you have come across me on the European CML website. I finally started Glivec after a long wait on 6th Dec....
erees@...
Feb 5, 2001 12:58 pm
6
Congratulations Erick, I wish you all the best in your treatment. Jerry...
jerry@...
Feb 5, 2001 2:37 pm
7
Hi Elizabeth Thanks for joining our Glivec discussion group. I do remember you from the European CML website @ http://www.newcmldrug.com/uksupportgroup/ and...
Erick
fossileyesd@...
Feb 5, 2001 10:00 pm
8
... Thank you Jerry. I am very optimistic about Glivec being "just what the doctor ordered" for me (even tho I did have to go out and find the trial info for...
Erick
fossileyesd@...
Feb 5, 2001 10:20 pm
9
I had my one week checkup today, all is fine, "counts" are good, I have no side effects at all. I stopped all my other drugs (hydroxyurea, allopurinal and...
Erick
fossileyesd@...
Feb 7, 2001 7:21 am
10
WT1 trials will be starting at the Hammersmith in London soon and will involve patients with advanced leukaemias for Phase 1. More info on WT1 on...
erees@...
Feb 7, 2001 5:37 pm
11
Greetings to all list members. I am a CML patient, diagnosed in June of 2000. 3 months ago I entered a clinical trial for STI571 (Glivec) at MD Anderson...
Dane Tessler
dane714@...
Feb 8, 2001 9:23 pm
13
Greetings Dane, Welcome to the Glivec discussion group! I see that you are one of the brave ones that accepted INF as a treatment, but that unfortunately it...
Erick
fossileyesd@...
Feb 9, 2001 7:06 am
14
Hello everyone, and welcome to everyone! I encourage all members to post a introductory message telling a little something about yourselves, if you want to....
Erick
fossileyesd@...
Feb 9, 2001 8:03 am
15
Hello Erik, et. al. I only had a two day break of medication when switching from INF to Glivec...so it took a while for the side effects of the former to wear...
Dane Tessler
dane714@...
Feb 9, 2001 12:04 pm
16
Hi all, Finally back on line after week with the flu. Have just completed my second week on Glivec. I learnt today why they say to stay vertical for thirty...
dynamics@...
Feb 9, 2001 2:01 pm
17
Hi all, We're new to this site. Jill, my wife, has been on Glivec (Still think of it as STI) since July 2000. She has had a difficult time of it well before we...
richardlj@...
Feb 9, 2001 2:13 pm
18
... I stopped my other meds, (hydrea, allopurinal and procrit,) the day I started taking Glivec. I reduced my hydrea intake a couple of days before starting,...
Erick
fossileyesd@...
Feb 9, 2001 10:48 pm
19
... Hello Beau, and welcome to our discussion Group. I believe that you and I have chatted together in the CML group chat room - it is good to "see" you again...
Erick
fossileyesd@...
Feb 9, 2001 11:24 pm
20
... Hello Richard and Jill, and welcome to our discussion group! Everybody: Richard and Jill are the couple that told me about the Glivec clinical study in my...
Erick
fossileyesd@...
Feb 9, 2001 11:53 pm
21
Hello everyone Just a few hints on how to deal with the Glivec side effects. The only one and wonderful Brian Druker recommended using Preparation H under the...
erees@...
Feb 10, 2001 1:56 pm
22
Here's a good description of Glivec (STI571) http://healthsurfing.com/health/2001/02/09 They have done a good job with this report, it is well worth visiting ...
Erick
fossileyesd@...
Feb 13, 2001 12:42 pm
23
In case anyone doesn't already know it: Dr. Druker is featured in the February 19, 2001 issue of People Magazine, currently on newsstands everywhere. The title...
Erick
fossileyesd@...
Feb 15, 2001 8:03 am
24
A promising possible option in development - for when Glivec alone is not enough: Article about Leptomycin B used together with STI-571, Copley News Service, ...
Erick
fossileyesd@...
Feb 15, 2001 8:11 am
26
Has anyone had a FISH result of 0%? My results keep coming back with a small percentage - 2.5% at 6mo BMB, 7.5% at 9mo BMB - I know the "normal" range is 0-10%...
alobc@...
Feb 15, 2001 1:28 pm
27
Interesting you should mention this. I have noticed changes on my skin (upper arm) and itch (thigh) and all the Drs I mention this to seem de discard it as...
alobc@...
Feb 15, 2001 1:39 pm
28
... ==================================================================== My Jill has had 0% PH since the 11th week after starting Glivec. All FISH tests after...
richardlj@...
Feb 15, 2001 1:59 pm
29
Linda Bartlett from Cody, WY here. Dxed Oct 97, Been on STI571 (Glivec) since Aug 99. Zero PH+ since Jan. 2000. Member of UCLA Phase One Trial, started at...
lbartlt@...
Feb 16, 2001 3:23 pm
30
I too have thyroid problems and have had high triglycerides since I was diagnosed in Oct 97. I've been on two triglyceride meds, one made me extremely ill and...
lbartlt@...
Feb 16, 2001 3:34 pm
31
Hello Everyone, Although I recognize alot of your emails from the CML group I thought I should introduce myself. My name is Cathy Cloin, dxd 9/90, I was on...
CathyCloin1@...
Feb 16, 2001 3:42 pm
32
Hi Linda, Boy your trip sounds wonderful. Have a great time! I was interested in what you had to say about triglycerides as mine have been mildly elevated for...