Oh MY GOSH!! Sylvia I don't remember that!! What was going on in my head at that
time!! I have my doctor bills down pretty good but it goes up gradually
everytime I see him.He has me down to 4-6 months apart for visits.How about the
rest of you? I do get worried that it's so ong between visits.Mama goes to her
oncologist every 3 months.She is covered 100% with medicare and AARP.I have
zilch.I am so sorry I didn't follow through that,Sylvia..and can't even remember
getting it in the mail.
Freeda




Gleevec@yahoogroups.com wrote: There are 2 messages in this issue.

Topics in this digest:

1. Re: Digest Number 1138
From: Freeda
2. Re: Digest Number 1138
From: Silvia Keidel


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Message: 1
Date: Sun, 29 Jan 2006 16:59:09 -0800 (PST)
From: Freeda
Subject: Re: Digest Number 1138

Hi,Luis,
I can't help you because I am Scandanavian descent and British isles.I have
horrible skin to begin with.Never could be in the sun long and doc says not at
all now.I am no paler.I do have drier skin.But I think that's diabetes (which
I've had for over 40 years).
I never did have a lot of hair..but enough to have a good hairstyle. After
Gleevec it started falling out and replacing itself.So I had to keep it very
short.Then I started seeing large bald places.Then what I have left stands
straight up.Can't call it punk because there are too many bald
spaces...LOL!!!Wigs are the answer.
They foot cramps are still raging! been told reasons from A-Z and no one does
anything about it.Without insurance no one is very eager to do anything...Good
old USA and medical woes.
It's good to see your names on here again!!
Luis,what month were you diagnosed? Mine was Nov 5th 2001.Then in Jan 02 I found
out what type Leukemia it was and then was put on Gleevec.So by March I was home
free.There was one scare when my white cells excellerated over night.
I've only had one BMB and never again without being knocked out cold.I found it
very difficult to stay still.And too scared to move!!

Sylvia,I didn't know about the Society. And living in AR we don't get much
happening here!!
Good health to you all!!
Freeda



Message: 1
Date: Sat, 28 Jan 2006 07:17:35 -0800 (PST)
From: luis montesinos
Subject: Re: Digest Number 1136

Freeda, Good to hear that you are doing well. I am also going into my fourth
year!!!
I wanted to ask if any of you have experienced any skin related changes since
taking Gleevec. I use to be what you would call a "brown man" now I am going
into the pale side. My doctor has only two other patient in Gleevec and they all
have fair skin so they are not good source of info.
Best to all
Luis

Freeda wrote: Hi,everyone!!
We never keep in touch any longer.I am doing well and just going into my 4th
year remission!!!!!! Nearly NO hair now.What I have sticks up or out.I got two
wing for Cristmas from Merl Norman.They really boosted my self esteem!Don't even
look like wigs! Now my husband never knows who he will be out with!
I hope everyone is doing well!!
Freeda




Message: 2
Date: Sat, 28 Jan 2006 14:00:02 -0800 (PST)
From: Silvia Keidel
Subject: Re: Digest Number 1136

Hi Freeda and everyone!
I wonder that myself why conversation and info fell asleep almost two years ago
on this site.

Freeda, good thing with the wig, but what is the reason for your sudden
hairloss? You have been on Gleevec for so long and now this?

But otherwise I am glad to hear from you again. Did you check Leukemia Society
out? Me and my husband went to their Christmas Party,which was a wonderful
source for me to socialize with people walking in the same shoes as I don't get
out of the house much.

Love to hear from you back!

Silvia
5yrs remission



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Message: 2
Date: Sun, 29 Jan 2006 18:53:41 -0800 (PST)
From: Silvia Keidel
Subject: Re: Digest Number 1138

Freeda,
do you remember the email with all the info I sent you some month ago for the
Leukemia and Lymphoma Society? I checked that out for you back then and mailed
you that the St. Louis Chapter in Missouri was covering your state.
I do believe that not much is happening in AR, so thats why I thought it might a
good idea for you to register with them since you don't have insurance like me.
They will cover your out-of-pocket cost for Gleevec, lab work and re-imburse you
for transportation.Should you need some help contacting them, I will be glad to
help you, please let me know.

Silvia



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________________________________________________________________________
________________________________________________________________________


Thank you for being a Gleevec Discussion Group Member!
------------------------------------------------------------------------
Yahoo! Groups Links




------------------------------------------------------------------------







Freeda

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PhotoMail - it's free and works with Yahoo! Mail.

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