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Re: Digest Number 1062   Message List  
Reply | Forward Message #4638 of 4801 |
Re: Digest Number 1062


Freeda,

Procrit IS good for CML'ers to have. When it was first approved by
the FDA it was not approved for use in Myeloid cancers, but is able
to be prescribed "off label" for our use. I have used it numerous
times and I know of many many others who have also used it. The
first thing that you need to do is have your hemoglobin checked via
a regular CBC and then your doctor can prescribe it for you if yours
is low. It is a very expensive injectable drug, so some insurance
companies have rules about how low your hemo needs to be before they
will pay for it.

Please, check with your doctor and your insurance company, because
it is a wonderful drug!!

Let me know if I can help anymore.

Trisha
CML dx 9/99

--- In Gleevec@yahoogroups.com, Freeda Berry <no1freeda@y...> wrote:
> I was surprised to read that procrit may not be good for all
cml'ers.I had some hope when I read telephonics reply and had
hopes.Thanks,though,telephonics!!! So maybe the iron is the answer.I
will check on that too.ANYTHING!!! I get reasured when I read that I
am not alone.Some times I feel all alone in this thing.Then I think
maybe it's a small price to be able to enjoy my family and
friends.Without Gleevec I may not be here to have that opportunity.
> Thank you all for being there when I have a complaint and need to
whine a little.I am just used to doing SO much and get so
discouraged when I don't have the strength.
> Freeda
>
>
>







Wed Nov 10, 2004 11:22 pm

leukichick
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Message #4638 of 4801 |
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I was surprised to read that procrit may not be good for all cml'ers.I had some hope when I read telephonics reply and had hopes.Thanks,though,telephonics!!!...
Freeda Berry
no1freeda
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Nov 10, 2004
12:48 am

Has anyone heard from the lady (I am sorry to say I can't remember her name) that we sent the cheery cards to? She was getting ready to have bone marrow...
Freeda Berry
no1freeda
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Nov 10, 2004
12:51 am

Freeda, Procrit IS good for CML'ers to have. When it was first approved by the FDA it was not approved for use in Myeloid cancers, but is able to be prescribed...
Trisha
leukichick
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Nov 10, 2004
11:22 pm

Freeda: I am getting Procrit shots once a month for my anemia. I have had lots of problems with fatigue. It is okay to take Procrit for anemia if you have...
knottsm156
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Dec 17, 2004
6:34 pm
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