--- In Glivec@y..., richardlj@y... wrote:

> Hi all,
> We're new to this site.
> Jill, my wife, has been on Glivec (Still think of it as STI) since
> July 2000. She has had a difficult time of it well before we found
> out that she had CML. Head pains and crappy feelings all the time.
>
> Her story can be found on the English site:
> http://www.cmlsupport.org.

Hello Richard and Jill, and welcome to our discussion group!

Everybody: Richard and Jill are the couple that told me about the
Glivec clinical study in my area, and I'm so very thankful to them
for that - as I would never have known about it time if they hadn't
told me when they did.

> She has been having all the side effects, some nausea, some
> cramping, acid reflux, puffy eyes. She still had the head pains and
> crappy feelings even after her PH% went to zero after 11 weeks.

We all hope she soon has NO side effects. Isn't her dose rather high
because she was initially in an accelerated phase? Perhaps she will
be able to reduce her dose soon and maybe that will help ease those
symptoms.

> A new doctor (internist) found out two weeks ago that she had low
> thyroid output and high trigliceride levels. Medication helped after
> three days and she felt better than she had in years.

They (doctors and others) say that CML and thyroid problems are not
related - but it sure seems a unusually large number of us have
thyroid problems, regardless of our treatments or drugs. I was dxd
hypothyriod same time as my CML dx.

> Thanks for setting up this site Erick. It looks like it will be good
> for those on Glivec.
>
> Richard and Jill
> Jill dx CML 01/99
> Glivec 06/00
> Trial #114 - Accelerated

Thanks for joining with us and sharing your experiences Richard and
Jill. And please know I will always have a caring place in my heart
for you two. Keep us "posted" OK?


Erick, dx CML 10/20/00
Glivec since 01/31/01
Please visit the Glivec Discussion Group @
http://groups.yahoo.com/group/glivec