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#1394 From: "LauraMacF" <lauramacf@...>
Date: Tue Nov 17, 2009 2:53 am
Subject: Re: Ingredient Labels
LauraMacF
Offline Offline
Send Email Send Email
 
I thought I'd add to this thread what Trader Joe's website says about "good
manufacturing practices," and their labeling policies:

What are the Allergen Labeling Standards for Trader Joe's Private Label
Products?
As with all health and safety related issues, we take food allergy concerns very
seriously. We strive to ensure that all of our Trader Joe's brand products are
labeled with reliable, accurate, and easy to read ingredient statements.

Trader Joe's strictly adheres to all Federal labeling guidelines. You can be
assured that if any of the top eight allergens (milk, eggs, peanuts, tree nuts,
fish, shellfish, wheat and soy) are present in our private label products, they
will be clearly labeled in familiar terms in our ingredient statements [e.g.
casein (milk)]. You can also be certain that if "natural flavors" or "spices"
contain any components that are allergens or are derived from allergens, they
will be listed separately within the ingredient statement.

In addition, we have voluntarily included information about the manufacturing
process of our products ("Made on shared equipment..." and "Made in a facility
that processes..."). What these statements don't include (there is only so much
room on the label) is that all Trader Joe's private label suppliers follow Good
Manufacturing Practices (GMP's). We work closely with all of the companies that
manufacture our products and require that they are vigilant about minimizing and
monitoring any potential cross contamination risk. Some of the steps taken to
prevent cross contamination include education and training of employees about
allergens, careful labeling and segregation of allergen ingredients, cleaning of
lines between production runs and stringent scheduling of product runs.
Manufacturers may even use alternate days to process products that contain
allergens from those products that do not.

We provide you with all of this information so you can feel confident that you
are making informed buying decisions. We want you to feel safe, comfortable and
thrilled by with the food choices you are making.

As manufacturers and ingredients can change, we strongly encourage our customers
to read ingredient information every time they buy a Trader Joe's brand product
(or any product, for that matter).

--- In GatewayFEAST@yahoogroups.com, "LauraMacF" <lauramacf@...> wrote:
>
> I agree with what everyone else has said about the labels. My DD is allergic
to wheat, dairy, egg, treenuts, peanuts, and assorted seeds. Some of her
allergens are worse than others, and I, like Carol, make some exceptions for a
few situations--but I recognize I'm doing so at our own risk, and I only do this
with those allergens that, for her, aren't connected to severe reactions.
>
> One big reason why I don't make exceptions very often has more to do with the
message it sends my dd than anything else. I want her to never take risks, so I
have to make a point of doing things exactly as I would want her to do it when
she is old enough to be making all her own choices. When there are no precise
explanations of what exactly "good manufacturing practices" are, I put it back
on the shelf. We are careful to talk to her about everything regarding labeling,
and now that she is 9 she is an active participant in label reading.
>
> The labels *are* confusing, and it can be disappointing to have to put
something back on the shelf, but I've really come to appreciate informative
labeling when it is there (even if it's a disappointing label!) Many times the
manufacturers or distributors are covering their butts with these labels, for
instance, Trader Joe's is repackaging a product that I trust with all my heart,
and slapping a label on it that doesn't reflect the real manufacturer's
policies. So, I don't buy the Trader Joe's version, even though it costs less.
It is in part a protest against this practice which I think Trader Joe's and
Whole Foods are both heavy-handed with in their re-labeled products, in part
support for a good manufacturer with a great allergen policy (Turtle Mountain
foods is the one I'm thinking of), and in part a visible lesson for my daughter
about not taking chances.
>
> Laura F.
>
> --- In GatewayFEAST@yahoogroups.com, "nickcarold" <canico.depke@> wrote:
> >
> > Let's start w/ the bread question.  Most Sara Lee breads are safe for D, E,
P, T.  Check them before you buy, but we have used them for years both wheat and
white.
> >
> > As for the made on shared equipment.  More than likely you should avoid them
as that would be concern for cross contamination.  However, I will say w/ milk
and egg, if it's made in the same facility, but NOT run on the same machine, I
am less worried than the peanut.  Milk and eggs don't fly from one machine to
another like a peanut can w/ the peanut dust, shells, etc.  It's a fine line
though, but I would avoid it all since your son is so allergic, even the cross
contamination ones.
> >
> > Restaurants, again there is a file under DATABASE to the left in the light
blue box w/ restaurants.  You can usually go anywhere, granted it may not be
child friendly food, but chefs are getting better about preparing things for
those w/ food allergies, you just have to ask.  When our son was allergic to M,
E, P, T~we basically just brought a small size lunch box w/ dinner for him with
us and usually were able to get the french fries or something there.  Usually
they don't mind if you bring food, but ask the manager and it's good practice
anyway to get used to calling ahead or look on-line to see if they have allergy
information there.
> >
>

#1393 From: "LauraMacF" <lauramacf@...>
Date: Tue Nov 17, 2009 2:47 am
Subject: Re: Ingredient Labels
LauraMacF
Offline Offline
Send Email Send Email
 
I agree with what everyone else has said about the labels. My DD is allergic to
wheat, dairy, egg, treenuts, peanuts, and assorted seeds. Some of her allergens
are worse than others, and I, like Carol, make some exceptions for a few
situations--but I recognize I'm doing so at our own risk, and I only do this
with those allergens that, for her, aren't connected to severe reactions.

One big reason why I don't make exceptions very often has more to do with the
message it sends my dd than anything else. I want her to never take risks, so I
have to make a point of doing things exactly as I would want her to do it when
she is old enough to be making all her own choices. When there are no precise
explanations of what exactly "good manufacturing practices" are, I put it back
on the shelf. We are careful to talk to her about everything regarding labeling,
and now that she is 9 she is an active participant in label reading.

The labels *are* confusing, and it can be disappointing to have to put something
back on the shelf, but I've really come to appreciate informative labeling when
it is there (even if it's a disappointing label!) Many times the manufacturers
or distributors are covering their butts with these labels, for instance, Trader
Joe's is repackaging a product that I trust with all my heart, and slapping a
label on it that doesn't reflect the real manufacturer's policies. So, I don't
buy the Trader Joe's version, even though it costs less. It is in part a protest
against this practice which I think Trader Joe's and Whole Foods are both
heavy-handed with in their re-labeled products, in part support for a good
manufacturer with a great allergen policy (Turtle Mountain foods is the one I'm
thinking of), and in part a visible lesson for my daughter about not taking
chances.

Laura F.

--- In GatewayFEAST@yahoogroups.com, "nickcarold" <canico.depke@...> wrote:
>
> Let's start w/ the bread question.  Most Sara Lee breads are safe for D, E, P,
T.  Check them before you buy, but we have used them for years both wheat and
white.
>
> As for the made on shared equipment.  More than likely you should avoid them
as that would be concern for cross contamination.  However, I will say w/ milk
and egg, if it's made in the same facility, but NOT run on the same machine, I
am less worried than the peanut.  Milk and eggs don't fly from one machine to
another like a peanut can w/ the peanut dust, shells, etc.  It's a fine line
though, but I would avoid it all since your son is so allergic, even the cross
contamination ones.
>
> Restaurants, again there is a file under DATABASE to the left in the light
blue box w/ restaurants.  You can usually go anywhere, granted it may not be
child friendly food, but chefs are getting better about preparing things for
those w/ food allergies, you just have to ask.  When our son was allergic to M,
E, P, T~we basically just brought a small size lunch box w/ dinner for him with
us and usually were able to get the french fries or something there.  Usually
they don't mind if you bring food, but ask the manager and it's good practice
anyway to get used to calling ahead or look on-line to see if they have allergy
information there.
>

#1392 From: "btbook20028302002" <btbooker@...>
Date: Mon Nov 16, 2009 7:21 pm
Subject: Re: New w/questions
btbook200283...
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Linda, has your child had a rast test to gelatin? Basing this only on reaction
to varicella or even more than one vaccine may not be accurate. the truth is,
there are several agents in vaccines that pose an allergic or sensitivity
threat. Doctors disagree on even if this is a true allergy or sensitivity -
especially if hives is the only indicator. After that, I suppose the good news
is many kosher foods don't contain gelatin as it is derived from pork. While i
don't recall anyone ever telling me they are allergic to gelatin, I know plenty
who avoid it as a religious measure. Since many muslim diets exclude pork, foods
from predominantly jewish or muslim countries might be a nice alternative to
traditionally american foods.
You and your child's pediatrician will have to figure out what measures to take
as far as vaccines are concerned. In what other ways has this impacted his life?
Tonya
STLFASG leader

--- In GatewayFEAST@yahoogroups.com, "kl_king@..." <kl_king@...> wrote:
>
> Hi.  I'm a new member.  Any chance that someone on this board has a family
member with an allergy to gelatin?  It's a rare allergy and one of our 10 year
old sons was diagnosed with this after having a reaction to his booster
varicella vaccine.
>
> Thanks,
> Linda
>

#1391 From: "btbook20028302002" <btbooker@...>
Date: Mon Nov 16, 2009 6:41 pm
Subject: Re: new to group
btbook200283...
Offline Offline
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Hi Amy!
My name is Tonya Booker and I am the leader of the St. Louis Food Allergy
Support Group that Carol mentioned in another posting. My son, Nicholas, was
diagnosed at a year after his daycare provider switched breast milk with regular
milk - although we knew something was wrong way before that. At this time, he is
allergic to 22 different foods but at 10 years old, he is happy and well
adjusted. Not so much for his mom. lol. Nicholas also has asthma and eczema; his
food allergies include those you mentioned.
  All of us know how scary those first few months are after a diagnoses or
episode. Some days you just wonder if you can take it all. But somehow you begin
to navigate everything and although there are always bumps in the road, you find
your way. I'd love to talk with you when you have some time about the issues
that are particularly troubling to you right now; I'm not sure where you live
but if after talking, you're still uncomfortable with safe foods for him, i'd be
willing to meet you at a grocery store to read labels/discuss alternatives.
Our next meeting will most likely be January 27th 2010 although we are still
firming things up. Our topic will be alternative approaches to food allergies
and we will have guest speakers. I will post more info as we get things firmed
up and you may not even be ready for that type of thing yet or ever but we have
some great parents who can offer suggestions and a shoulder. Call me at
314.605.6375 so we can get started.

--- In GatewayFEAST@yahoogroups.com, "amym.simpson" <amy.m.simpson@...> wrote:
>
> Hi!  Our almost 2 yr old son has severe food allergies, eczema, and likely
asthma (he's also had RSV).  He was diagnosed around 6 months, after having
reactions to breastmilk.  He is severely allergic to dairy, egg, peanut and tree
nuts.  We've unfortunately already had to use the epi pen twice.  Our older
daughter (4) has no allergies, so this is all new to us.  It's so overwhelming
watching every move he makes.  Looking for support and suggestions on safe foods
for his age and allergies.  Looking forward to attending a meeting.  When is the
next one?  Thanks!
>

#1390 From: "nickcarold" <canico.depke@...>
Date: Mon Nov 16, 2009 5:59 pm
Subject: Re: Ingredient Labels
nickcarold
Offline Offline
Send Email Send Email
 
Let's start w/ the bread question.  Most Sara Lee breads are safe for D, E, P,
T.  Check them before you buy, but we have used them for years both wheat and
white.

As for the made on shared equipment.  More than likely you should avoid them as
that would be concern for cross contamination.  However, I will say w/ milk and
egg, if it's made in the same facility, but NOT run on the same machine, I am
less worried than the peanut.  Milk and eggs don't fly from one machine to
another like a peanut can w/ the peanut dust, shells, etc.  It's a fine line
though, but I would avoid it all since your son is so allergic, even the cross
contamination ones.

Restaurants, again there is a file under DATABASE to the left in the light blue
box w/ restaurants.  You can usually go anywhere, granted it may not be child
friendly food, but chefs are getting better about preparing things for those w/
food allergies, you just have to ask.  When our son was allergic to M, E, P,
T~we basically just brought a small size lunch box w/ dinner for him with us and
usually were able to get the french fries or something there.  Usually they
don't mind if you bring food, but ask the manager and it's good practice anyway
to get used to calling ahead or look on-line to see if they have allergy
information there.

#1389 From: rebecca witko <rebecca_witko@...>
Date: Mon Nov 16, 2009 3:03 pm
Subject: Ingredient Labels
rebecca_witko
Offline Offline
Send Email Send Email
 
Hi,
 
We have the same food allergies in our family and honestly, I don't tend to trust those labels when it states that.  If the food was made on shared equipment, I've just found that you can't count on there not being cross-contamenation. Unfortunately, my solution for bread isn't the easiest or most convenient but I have taken to making our own. I have a bread machine at home and it's actually so easy and that way I know what's in it is safe for us. Not sure if that helps.
 
Rebecca


#1388 From: michele zimmerman <zimmerman_michele@...>
Date: Mon Nov 16, 2009 2:16 am
Subject: FW: Apricot and White Chocolate Scone Recipe
michelezimme...
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These are a great egg free scone. I substitute the apricot and White choc. with mini choc. chips. My kids love them and so do we. Michele


From: zimmerman_michele@...
To: kathleenfalk@...; jbaj01@...; zimmerman_michele@...
Subject: Apricot and White Chocolate Scone Recipe
Date: Thu, 17 Aug 2006 12:14:53 -0700

Apricot and White Chocolate Scone Recipe
 
2 c. flour
1/4 c. sugar
1/2 tsp. salt
1/2 tsp baking soda
2 tsp baking powder
1/2 c. butter
1/2 c. buttermilk (I use whole milk and it still turns out good)
1/3 c. dried apricots, chopped
4 oz. white chocolate( I use about 1/4- 1/3 c. of white chocolate chips)
 
Combine dry ingredients in mixer. Cut in butter to coarse crumbs. Stir in white chocolate and apricots. Pour in buttermilk and mix until dough comes together. Divide into two. Pat into rounds. Cut each round into 6 wedges. Place on greased baking sheet and bake at 400 degrees for 12-15 min. or until lightly browned.
 
Of course you can sub. any dried fruit.  Andrew loves just mini choc. chips


Hotmail: Trusted email with powerful SPAM protection. Sign up now.

#1387 From: "amym.simpson" <amy.m.simpson@...>
Date: Mon Nov 16, 2009 2:08 am
Subject: Ingredient Labels
amym.simpson
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When a label states "vendors use good practices to segregate ingredients to
avoid allergens.  Made on shared equipment with milk, egg..."  Do you go ahead
and trust/use that product or still avoid it? I get confused by those labels.
I'm also looking for any breads that are dairy/egg/peanut/tree nut free and not
made on shared equipment.  We use a lot of crescent rolls and flour tortillas,
but looking for a new bread to use.
Finally, I'm also looking for safe/recommended restaurants and fast food places.
Thanks!!

#1386 From: "amym.simpson" <amy.m.simpson@...>
Date: Mon Nov 16, 2009 1:41 am
Subject: Re: new to group
amym.simpson
Offline Offline
Send Email Send Email
 
We used to use Lisa Suffian, we recently switched to Dr. Elyra Figueroa.  She is
wonderful!  So easy to talk to.  She also has a small child with several food
allergies.  She has offices in Kirkwood, Lake St. Louis and Festus.  I highly
recommend her.

--- In GatewayFEAST@yahoogroups.com, "Gina" <rostalecki@...> wrote:
>
> Hi everyone, I joined the group at the Food Allergy Fair but haven't
> had time to introduce myself.  My name is Gina and we moved here
> (Kirkwood) from Chicago.  I am originally from St. Louis and my
> husband is from Detroit.  DD is 4 1/2 and allergic to Peanut, DS is 2
> years and just outgrew egg and used to be allergic to soy or was
> misdiagnosed.  We also avoid tree nuts and shellfish. We were going
> to Children's Memorial Hospital in Chicago and I still intend to test
> with them every year but I was wanting to know what Ped. Allergist
> everyone goes to here?  I called STL Childrens but they want us to
> retest and we just did all of that in March.  Also, I wanted to add
> Chipotle to the list of allergen-friendly restuarants.  We've been
> eating there for a few months and I e-mailed them again to verify
> what I'd been told before.  We no longer avoid egg so this is for
> peanut and tree nut.  Here is their response:
>
> Dear Mrs. Ostalecki:
>
> Thank you for writing to us. We use no peanuts or tree nuts in our
> foods, but you can find our official allergen and nutrition
> information on our website at www.chipotle.com/faq. Have a great
> weekend.
>
> Sincerely,
>
> George Seno
> Department of Gripes and Happiness
> Chipotle
>
>
> Thanks and I look forward to meeting everyone!
> Gina O.
>

#1385 From: "nickcarold" <canico.depke@...>
Date: Sun Nov 15, 2009 9:23 pm
Subject: Re: egg free pastries
nickcarold
Offline Offline
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I'm not aware of any, but we use the Pillsbury crescent and cinnamon rolls in
the dairy section.  They are safe and things can be added to them like jelly,
etc.  Hope that helps!


--- In GatewayFEAST@yahoogroups.com, "sandradlitteken" <littekenteamof4@...>
wrote:
>
> Are there any local bakeries that have any egg free, peanut/nut free pastries?
Thanks very much, Sandra
>

#1384 From: "Robert" <rhwebb1298@...>
Date: Sun Nov 15, 2009 4:06 pm
Subject: Re: new to group
rhwebb1298...
Offline Offline
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Gina,

Welcome to the group, I joined at the Fair also.  As far as a ped. allergist, we
go to Lisa Suffian on Ballas.  She is wonderful with my daughter.  My daughter
was diagnosed and began seeing her when she was 2 (she's 8 now) and she loves
Dr. Suffian.  She is really great with explaining things to parents too.

Hope it helps,
Holly

--- In GatewayFEAST@yahoogroups.com, "Gina" <rostalecki@...> wrote:
>
> Hi everyone, I joined the group at the Food Allergy Fair but haven't
> had time to introduce myself.  My name is Gina and we moved here
> (Kirkwood) from Chicago.  I am originally from St. Louis and my
> husband is from Detroit.  DD is 4 1/2 and allergic to Peanut, DS is 2
> years and just outgrew egg and used to be allergic to soy or was
> misdiagnosed.  We also avoid tree nuts and shellfish. We were going
> to Children's Memorial Hospital in Chicago and I still intend to test
> with them every year but I was wanting to know what Ped. Allergist
> everyone goes to here?  I called STL Childrens but they want us to
> retest and we just did all of that in March.  Also, I wanted to add
> Chipotle to the list of allergen-friendly restuarants.  We've been
> eating there for a few months and I e-mailed them again to verify
> what I'd been told before.  We no longer avoid egg so this is for
> peanut and tree nut.  Here is their response:
>
> Dear Mrs. Ostalecki:
>
> Thank you for writing to us. We use no peanuts or tree nuts in our
> foods, but you can find our official allergen and nutrition
> information on our website at www.chipotle.com/faq. Have a great
> weekend.
>
> Sincerely,
>
> George Seno
> Department of Gripes and Happiness
> Chipotle
>
>
> Thanks and I look forward to meeting everyone!
> Gina O.
>

#1383 From: "sandradlitteken" <littekenteamof4@...>
Date: Sun Nov 15, 2009 1:22 pm
Subject: egg free pastries
sandradlitteken
Offline Offline
Send Email Send Email
 
Are there any local bakeries that have any egg free, peanut/nut free pastries? 
Thanks very much, Sandra

#1382 From: "sewcreativestl" <sewcreativestl@...>
Date: Sat Nov 14, 2009 6:36 pm
Subject: Re: new to group
sewcreativestl
Offline Offline
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Hi amy!!

welcome!  i havn't gone to a meeting - just participated in online discussions.

but my son just turned 2 - and is allergic to all your sons things - plus wheat.
i know it is super frustrating!!

this is my favorite website for recipes -
http://recipecircus.com/recipes/Writermom77/  but it is wheat/gluten free - and
you don't really need that too.

we have an epi pen but thankfully haven't had to use it yet.  my son just gets
horrible rashes, hives, swelling and GI symptoms.

have you found the Enjoy Life brand of things??  they have a great chocolate bar
and chocolate chips.  everythign they make is free of the top 8 allergens.


Best of luck to you:)

leah

--- In GatewayFEAST@yahoogroups.com, "amym.simpson" <amy.m.simpson@...> wrote:
>
> Hi!  Our almost 2 yr old son has severe food allergies, eczema, and likely
asthma (he's also had RSV).  He was diagnosed around 6 months, after having
reactions to breastmilk.  He is severely allergic to dairy, egg, peanut and tree
nuts.  We've unfortunately already had to use the epi pen twice.  Our older
daughter (4) has no allergies, so this is all new to us.  It's so overwhelming
watching every move he makes.  Looking for support and suggestions on safe foods
for his age and allergies.  Looking forward to attending a meeting.  When is the
next one?  Thanks!
>

#1381 From: "Stephanie" <srhea729@...>
Date: Sat Nov 14, 2009 6:04 pm
Subject: Re: new to group
srhea729
Online Now Online Now
Send Email Send Email
 
Welcome to the group Gina and Kim!

Please let us know specifically what you are looking for (recipes, restaraunts,
special occasion treats, how to work with your school) and I know that there are
plenty of us here who can help.  Also, feel free to share your treasures (like
you already did).  We all love them!

There is a really good resource on this group for so many things.  carol did a
great job putting it all together... THANKS AGAIN CAROL!!!

Stephanie



--- In GatewayFEAST@yahoogroups.com, "Gina" <rostalecki@...> wrote:
>
> Hi everyone, I joined the group at the Food Allergy Fair but haven't
> had time to introduce myself.  My name is Gina and we moved here
> (Kirkwood) from Chicago.  I am originally from St. Louis and my
> husband is from Detroit.  DD is 4 1/2 and allergic to Peanut, DS is 2
> years and just outgrew egg and used to be allergic to soy or was
> misdiagnosed.  We also avoid tree nuts and shellfish. We were going
> to Children's Memorial Hospital in Chicago and I still intend to test
> with them every year but I was wanting to know what Ped. Allergist
> everyone goes to here?  I called STL Childrens but they want us to
> retest and we just did all of that in March.  Also, I wanted to add
> Chipotle to the list of allergen-friendly restuarants.  We've been
> eating there for a few months and I e-mailed them again to verify
> what I'd been told before.  We no longer avoid egg so this is for
> peanut and tree nut.  Here is their response:
>
> Dear Mrs. Ostalecki:
>
> Thank you for writing to us. We use no peanuts or tree nuts in our
> foods, but you can find our official allergen and nutrition
> information on our website at www.chipotle.com/faq. Have a great
> weekend.
>
> Sincerely,
>
> George Seno
> Department of Gripes and Happiness
> Chipotle
>
>
> Thanks and I look forward to meeting everyone!
> Gina O.
>

#1380 From: "nickcarold" <canico.depke@...>
Date: Sat Nov 14, 2009 4:02 pm
Subject: Re: new to group
nickcarold
Offline Offline
Send Email Send Email
 
Hi Amy,
It is overwhelming and scary especially at first when they are so young and
helpless.  We work with another support group called St. Louis Food Allergy
Support Group that has 4 official meetings a year.  FEAST has more of the events
for the families.  Their next meeting is TBA in January.

As for foods, we can help with that if you let us know what you are looking for.
We also have a list in the Database link to the left in the box.  There is a
spreadsheet of sorts of foods others have found as substitutes.  We are here to
help, just let us know what you are looking for.  Thanks!
Carol

--- In GatewayFEAST@yahoogroups.com, "amym.simpson" <amy.m.simpson@...> wrote:
>
> Hi!  Our almost 2 yr old son has severe food allergies, eczema, and likely
asthma (he's also had RSV).  He was diagnosed around 6 months, after having
reactions to breastmilk.  He is severely allergic to dairy, egg, peanut and tree
nuts.  We've unfortunately already had to use the epi pen twice.  Our older
daughter (4) has no allergies, so this is all new to us.  It's so overwhelming
watching every move he makes.  Looking for support and suggestions on safe foods
for his age and allergies.  Looking forward to attending a meeting.  When is the
next one?  Thanks!
>

#1379 From: "amym.simpson" <amy.m.simpson@...>
Date: Fri Nov 13, 2009 3:59 pm
Subject: new to group
amym.simpson
Offline Offline
Send Email Send Email
 
Hi!  Our almost 2 yr old son has severe food allergies, eczema, and likely
asthma (he's also had RSV).  He was diagnosed around 6 months, after having
reactions to breastmilk.  He is severely allergic to dairy, egg, peanut and tree
nuts.  We've unfortunately already had to use the epi pen twice.  Our older
daughter (4) has no allergies, so this is all new to us.  It's so overwhelming
watching every move he makes.  Looking for support and suggestions on safe foods
for his age and allergies.  Looking forward to attending a meeting.  When is the
next one?  Thanks!

#1378 From: "nickcarold" <canico.depke@...>
Date: Sat Nov 7, 2009 2:53 am
Subject: Gateway FEAST Update/News
nickcarold
Offline Offline
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Hi FEASTers!

I wanted to touch base with you all before we get too caught up with the
holidays and next thing you know it's the new year.  It's time for us to re-
group and decide what we would like to do as 2010 approaches.  We held three
successful events this year: Kyle Dine Concert/Food Allergy Awareness
Week, Food Allergy Fair, and the Halloween Trick-or-Trinket.  We had two formal
meetings toward the beginning of last year, and had group work on and help pass
HB922 in MO.  We also hosted peanut-safe events w/ Circus Flora, the Rascals,
and the Cardinals.

We have subgroups forming so more localized meetings can be held as well making
the Gateway FEAST Yahoo! Group the connecting support.  St. Louis Food Allergy
Support Group for example has four formal meetings  a year w/ different topics,
so it works out well as together both groups offer different types of support.

The topic keeps coming up that perhaps we could form tween/teen and adult
groups.  I would LOVE for our group to do this, yet need people to step up and
start this ball rolling. We are missing providing even more support if we don't
get on this soon.  There are people who would really like to see this happen.

I would also like feedback as to what events you liked and would like to see us
do again.  Please include what you think about the sports events, etc.

Please share your thoughts as again, this group will not go forward without you
and your participation/volunteering.

Thanks!
Carol Depke
Coordinator
Gateway FEAST

#1377 From: GatewayFEAST@yahoogroups.com
Date: Fri Oct 23, 2009 7:58 pm
Subject: Halloween Trick-or-Trinket, 10/25/2009, 3:00 pm
GatewayFEAST@yahoogroups.com
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Reminder from:   GatewayFEAST Yahoo! Group
 
Title:   Halloween Trick-or-Trinket
 
Date:   Sunday October 25, 2009
Time:   3:00 pm - 5:00 pm
Location:   St. Luke's Hospital Institute for Health Education
Notes:   Doors open/crafts 3:00pm
BABALOO performing 3:30-4:30pm
Games/Crafts 4:30-5:00pm
 
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#1376 From: "Stephanie" <srhea729@...>
Date: Fri Oct 23, 2009 2:40 pm
Subject: Re: Looking for advise
srhea729
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Thanks, Carol.  This one was not very cut and dry to me.  I appreciate your
opinions on this.  I would welcome anyone else's as well.  I need to feel good
that I have not over or under reacted to this situation.  I understand that
everyone has different opinions.. but that is just what I am looking for!
TIA!

Stephanie

#1375 From: "nickcarold" <canico.depke@...>
Date: Thu Oct 22, 2009 12:02 am
Subject: Re: Looking for advise
nickcarold
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It depends on if the symptoms continued to present themselves or if they
stopped.  That is how an Food Allery Action plan usually works.  IF hives was
it, and Benedryl was the only symptom, then I would guess they shouldn't do
anything else, however, if more symptoms started to show, do whatever the plan
states, such as administer the Epi-pen.  An Epi-pen is not usually recommended
for "just" hives?

#1374 From: "Stephanie" <srhea729@...>
Date: Wed Oct 21, 2009 5:45 pm
Subject: Re: Potato allergy
srhea729
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I would ask about potato starch... if there is protein in that, you need to be
careful about all kinds of products.  But the best advise I can give is to check
every label every time!

--- In GatewayFEAST@yahoogroups.com, "ebethteach@..." <ebethteach@...> wrote:
>
> My 17mos old daughter has been allergic to eggs and soy. She recently has been
diagnosed as potato allergy on top of the others. I am having no luck finding
info on what other words (if any) I need to look for on labeling etc. I know
that she can still have sweet potato which is not the same and the obvious
mashed potatoes, fries, chips made with potato but what else should I watch out
for???? Help!!! Allergist still hasn't returned my call about this since I
forgot to ask while there.
>

#1373 From: "Stephanie" <srhea729@...>
Date: Wed Oct 21, 2009 5:43 pm
Subject: Re: Flu Mist Shot
srhea729
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The FAAN newsletter I just received contradicted the information that Carol and
I gave you.  PLEASE check with your doctor.  Let us know what his/her answer
is... that would be great!

Stephanie

--- In GatewayFEAST@yahoogroups.com, "michelezimmerman24"
<zimmerman_michele@...> wrote:
>
> So is it true my 7 y/o son who is allergic to egg and peanut can safely have
the nasal spray flu  as long as he does not have asthma?
>
> Michele
>

#1372 From: "Stephanie" <srhea729@...>
Date: Wed Oct 21, 2009 5:41 pm
Subject: Looking for advise
srhea729
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Hi all!  I am looking for some advise from my wonderful support group here... 
please let me know what you think the school nurse should have done in this
situation:

1st grade boy comes in to the school nurse's office.  He has known allergies
including many life threatening food allergies.  He has just returned from a
school field trip to the apple orchard/pumpkin farm.
He presents with a rash type of bumps all over his mouth and complains that the
inside of his mouth itches.  The nurse diagnoses the bumps as hives.  The boy
has taken a dose of Benedryl about 2 hours ago.

What should the school nurse do next?


I really do not know the correct answer to this.  I know what happened and it
just doesn't sit right for me, but I am not sure that I can verbalize to my
son's 504 team what SHOULD have happened... that's why I am turning to you all. 
What do you think?

Thanks in advance!

Stephanie

#1371 From: GatewayFEAST@yahoogroups.com
Date: Sat Oct 17, 2009 7:57 pm
Subject: Halloween Trick-or-Trinket, 10/25/2009, 3:00 pm
GatewayFEAST@yahoogroups.com
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Reminder from:   GatewayFEAST Yahoo! Group
 
Title:   Halloween Trick-or-Trinket
 
Date:   Sunday October 25, 2009
Time:   3:00 pm - 5:00 pm
Next reminder:   The next reminder for this event will be sent in 6 days, 2 minutes.
Location:   St. Luke's Hospital Institute for Health Education
Notes:   Doors open/crafts 3:00pm
BABALOO performing 3:30-4:30pm
Games/Crafts 4:30-5:00pm
 
Copyright © 2009  Yahoo! Inc. All Rights Reserved | Terms of Service | Privacy Policy

#1370 From: "nickcarold" <canico.depke@...>
Date: Wed Oct 7, 2009 1:06 am
Subject: Re: Flu Mist Shot
nickcarold
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Here is what our medical advisor, Dr. Borts said:

What about the flu shot and children with egg allergy?  What if they have
asthma?

Flu vaccines do contain varying amounts of egg proteins.  It is not recommended
that someone with an egg allergy get the flu shot.  Those with asthma are more
at risk for serious complications with the flu.  If your child has an egg
allergy and asthma, you should weigh the benefits of having / not having the flu
shot and discuss them with your doctor.  There are things you can do like split
into two smaller doses.  Also, if a patient doesn't have asthma, they can get
the Flumist, which still has some egg protein –so again, consult your doctor for
recommendations.

#1369 From: "nickcarold" <canico.depke@...>
Date: Wed Oct 7, 2009 1:02 am
Subject: Re: Flu Mist Shot
nickcarold
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I will ask our allergist/group medical advisor for his prof. opinion.
Carol

--- In GatewayFEAST@yahoogroups.com, "michelezimmerman24"
<zimmerman_michele@...> wrote:
>
> So is it true my 7 y/o son who is allergic to egg and peanut can safely have
the nasal spray flu  as long as he does not have asthma?
>
> Michele
>

#1368 From: "kl_king@..." <kl_king@...>
Date: Tue Oct 6, 2009 7:46 pm
Subject: New w/questions
kl_king...
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Hi.  I'm a new member.  Any chance that someone on this board has a family
member with an allergy to gelatin?  It's a rare allergy and one of our 10 year
old sons was diagnosed with this after having a reaction to his booster
varicella vaccine.

Thanks,
Linda

#1367 From: "cpg228" <cpg228@...>
Date: Tue Oct 6, 2009 1:21 pm
Subject: Re: Flu Mist Shot
cpg228
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Unfortunately just like the flu shot, FluMist should be avoided by people with
allergies to eggs.


--- In GatewayFEAST@yahoogroups.com, "michelezimmerman24"
<zimmerman_michele@...> wrote:
>
> So is it true my 7 y/o son who is allergic to egg and peanut can safely have
the nasal spray flu  as long as he does not have asthma?
>
> Michele
>

#1366 From: "michelezimmerman24" <zimmerman_michele@...>
Date: Mon Oct 5, 2009 8:18 pm
Subject: Flu Mist Shot
michelezimme...
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So is it true my 7 y/o son who is allergic to egg and peanut can safely have the
nasal spray flu  as long as he does not have asthma?

Michele

#1365 From: "stlalohagal04" <stlalohagal04@...>
Date: Mon Oct 5, 2009 7:42 pm
Subject: Anyone use Susan Burdy?
stlalohagal04
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Does anyone use her?  I'd like some feedback on her first.  Thanks!

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