hi ,yes I think it probably is but is is best to check with the consultant. Have a look at John Nozums website on about the 4th page, it might be worth contacting him too.
I am sorry to hear he is going through this bless him.
----- Original Message ---- From: brenda.knihniski <brenda.knihniski@...> To: GOLDENHAR@yahoogroups.com Sent: Saturday, 3 November, 2007 2:30:17 PM Subject: [GOLDENHAR] Alexander
Hello. I am Alexanders mom, Brenda. Alex is three months old and growing stronger every day. We had no idea that Alex had this syndrom until he was born. I am requesting some help... Alex is chronically congested, is this normal for this syndrom? We have tried everything under the sun to help him. The Dr.'s don't have any answers and we don't go back to Childrens till later on in the month.
Thank you for your time.
Brenda
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Hello. I am Alexanders mom, Brenda. Alex is three months old and
growing stronger every day. We had no idea that Alex had this syndrom
until he was born. I am requesting some help... Alex is chronically
congested, is this normal for this syndrom? We have tried everything
under the sun to help him. The Dr.'s don't have any answers and we
don't go back to Childrens till later on in the month.
Thank you for your time.
Brenda
Hello, I am a new member. I am forty and was born with Goldenhar
syndrome. I have had many surgical procedures. I also have scoliosis
and spondylosis of the neck (since 20yrs) and an enlarged heart. If I
can be any support to anyone let me know. It would be nice to talk to
others with the same condition, as we are such rare creatures!!
Sarah
hello, my name is melissa, and i have a 13 mnth old w/ gs, his name is
alec, wanted to know if anyone knows about quad muscle problems? or
shorter lower limb?