hi my girl has missing eye ball and small socket she can not hold anything in side it the doctors said they want to take mold of it for what reason. I dont...
My baby is almost 7 months old. She was born with out an eye and had a small eye socket. We are doing Hydrogel Expanders. THey put under ansthetic and insert...
hi I have heard some much about this group from my mom! My name is Erin and i am the mommy of the ONE and only madison that you have all heard so much about...
sorry if i confused u all. My mom was tellin me about a group. on yahoo. This isnt the same group that she was talkin about. THere are obviously two groups on...
... i learned that there were two groups on goldenhar syndrome on here! my mom was telling me how wonderful this group was and i was tellin her things and we...
Did u know there was another gs group....please join...http://health.groups.yahoo.com/group/goldenharsyndrome/ ... machine. My daughter who is now 22 months...
I have been trying to find an online support group for hemifacial microsomia and this is the closest I have been able to find. I think that HM and GS are...
hello, my name is melissa, and i have a 13 mnth old w/ gs, his name is alec, wanted to know if anyone knows about quad muscle problems? or shorter lower limb?...
Hello, I am a new member. I am forty and was born with Goldenhar syndrome. I have had many surgical procedures. I also have scoliosis and spondylosis of the...
Hello. I am Alexanders mom, Brenda. Alex is three months old and growing stronger every day. We had no idea that Alex had this syndrom until he was born. I...
hi ,yes I think it probably is but is is best to check with the consultant. Have a look at John Nozums website on about the 4th page, it might be worth...
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