Hi, I have a 3yr old daughter with GS (Affects left side of face, neck and left kidney) She's only had two minor ops (to correct her cleft lip)and we've just...
hi my girl has missing eye ball and small socket she can not hold anything in side it the doctors said they want to take mold of it for what reason. I dont...
My baby is almost 7 months old. She was born with out an eye and had a small eye socket. We are doing Hydrogel Expanders. THey put under ansthetic and insert...
hi I have heard some much about this group from my mom! My name is Erin and i am the mommy of the ONE and only madison that you have all heard so much about...
sorry if i confused u all. My mom was tellin me about a group. on yahoo. This isnt the same group that she was talkin about. THere are obviously two groups on...
... i learned that there were two groups on goldenhar syndrome on here! my mom was telling me how wonderful this group was and i was tellin her things and we...
Did u know there was another gs group....please join...http://health.groups.yahoo.com/group/goldenharsyndrome/ ... machine. My daughter who is now 22 months...
I have been trying to find an online support group for hemifacial microsomia and this is the closest I have been able to find. I think that HM and GS are...
hello, my name is melissa, and i have a 13 mnth old w/ gs, his name is alec, wanted to know if anyone knows about quad muscle problems? or shorter lower limb?...
Hello, I am a new member. I am forty and was born with Goldenhar syndrome. I have had many surgical procedures. I also have scoliosis and spondylosis of the...
Hello. I am Alexanders mom, Brenda. Alex is three months old and growing stronger every day. We had no idea that Alex had this syndrom until he was born. I...
hi ,yes I think it probably is but is is best to check with the consultant. Have a look at John Nozums website on about the 4th page, it might be worth...
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