This letter is to everyone out there with goldenhar syndrome or a family member with goldenhar. My name is Shannon, our son was born aug. 23,2000 with ...
shannonrudedog@...
Feb 7, 2001 4:26 am
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Hi! Shannon My name is Sol Crespo I'm from Panama and I have a 11th months godenhar son. He was born in march 28th, 2000. HE's healthy and beautiful. I can...
hi there i have a little girl she has gs and we have now been given a cpap i would like to know about this from any one whom has one. Also we will in the very...
Hi! I got your E-mail regarding your daughter who will be using a C-pap machine. My daughter who is now 22 months old was born 3 months prematurely and was on...
Hi, I have a 3yr old daughter with GS (Affects left side of face, neck and left kidney) She's only had two minor ops (to correct her cleft lip)and we've just...
hi my girl has missing eye ball and small socket she can not hold anything in side it the doctors said they want to take mold of it for what reason. I dont...
My baby is almost 7 months old. She was born with out an eye and had a small eye socket. We are doing Hydrogel Expanders. THey put under ansthetic and insert...
hi I have heard some much about this group from my mom! My name is Erin and i am the mommy of the ONE and only madison that you have all heard so much about...
sorry if i confused u all. My mom was tellin me about a group. on yahoo. This isnt the same group that she was talkin about. THere are obviously two groups on...
... i learned that there were two groups on goldenhar syndrome on here! my mom was telling me how wonderful this group was and i was tellin her things and we...
Did u know there was another gs group....please join...http://health.groups.yahoo.com/group/goldenharsyndrome/ ... machine. My daughter who is now 22 months...
I have been trying to find an online support group for hemifacial microsomia and this is the closest I have been able to find. I think that HM and GS are...
hello, my name is melissa, and i have a 13 mnth old w/ gs, his name is alec, wanted to know if anyone knows about quad muscle problems? or shorter lower limb?...
Hello, I am a new member. I am forty and was born with Goldenhar syndrome. I have had many surgical procedures. I also have scoliosis and spondylosis of the...
