Please try to join this group. IT is a goldenhar group it might be
able to help you more! I have joined both groups.
http://health.groups.yahoo.com/group/goldenharsyndrome IT will take a
day or so to be approved. but it is WELL worth your wait to get the
BEST information! There are lots of gs parents there also...
--- In GOLDENHAR@yahoogroups.com, "mazenandnoura"
<mazenandnoura@y...> wrote:
>
> hi my girl has missing eye ball and small socket she can not hold
> anything in side it the doctors said they want to take mold of it
> for what reason.
>
> I dont know under anithetic she is not good with this as has
servere
> breathing problems. last time took 25 times to get line in her.
>
>
> Well does any one know of what i can sugegst she has ben left 1
year
> her eye is so small and people notice this more. Do you think
sewing
> something in might work anyhelp advise pelase