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GOLDENHAR · HELP FOR PARENTS AND EDUCATORS OF CHILDREN WITH GOLDENHAR SYNDROME
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the eye socket   Message List  
Reply | Forward Message #379 of 456 |
Re: the eye socket


My baby is almost 7 months old. She was born with out an eye and had
a small eye socket. We are doing Hydrogel Expanders. THey put under
ansthetic and insert this expander and stitch it in place. it then
absorbs tears and stretches the socket. Then every 6-8 weeks they
will remove it and place a bigger one. I dont know if this is
something that might help your little one or not. My baby has a web
page it is www.caringbridge.org/ne/missmadison. Madison's air way is
small and it is very hard to intibate her. We have some VERY good
anesthiologists here! i really like the two that we have had do her
surgeries at the University of Nebraska Medical Center in Omaha. THey
have experience in difficult airways! I hope this helps you out. If
you have any further questions you may email me. I would be glad to
give you some names of people to contact about this procedure here in
the US. If that interests you.
--- In GOLDENHAR@yahoogroups.com, "mazenandnoura"
<mazenandnoura@y...> wrote:
>
> hi my girl has missing eye ball and small socket she can not hold
> anything in side it the doctors said they want to take mold of it
> for what reason.
>
> I dont know under anithetic she is not good with this as has
servere
> breathing problems. last time took 25 times to get line in her.
>
>
> Well does any one know of what i can sugegst she has ben left 1
year
> her eye is so small and people notice this more. Do you think
sewing
> something in might work anyhelp advise pelase






Sun Mar 13, 2005 5:40 pm

madisons_mom...
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Message #379 of 456 |
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hi my girl has missing eye ball and small socket she can not hold anything in side it the doctors said they want to take mold of it for what reason. I dont...
mazenandnoura
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Mar 2, 2005
1:51 pm

My baby is almost 7 months old. She was born with out an eye and had a small eye socket. We are doing Hydrogel Expanders. THey put under ansthetic and insert...
madisons_mommy_2004
madisons_mom...
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Mar 13, 2005
5:41 pm

Please try to join this group. IT is a goldenhar group it might be able to help you more! I have joined both groups. ...
madisons_mommy_2004
madisons_mom...
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Mar 13, 2005
6:16 pm
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