Hi, I have a 3yr old daughter with GS (Affects left side of face,
neck and left kidney) She's only had two minor ops (to correct her
cleft lip)and we've just been refered to birmingham childrens hosp
(uk). who are talking about a BAHA and Rib graft in the near future.
though reciently we've been contacted by a more local centre who say
they can do it better and sooner.

Problem is I'm not sure what all this involves let alone which group
should allow to treat my daughter!

The Doctors seem very good at giving you information that is either
above your head or not in debth enough and also seem to leave us
with a Vague Idea that there planing to do something, somewhen and
they'll tell us more later.

I recon I'm not asking the right questions. But I'm not naturally
assertive so I find it difficult to ask any at all.

Anyone else have this prob?

P.P