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#1187 From: "pozmilwaukee" <canolli@...>
Date: Fri Dec 7, 2007 2:24 pm
Subject: DDI and D4T 		pozmilwaukee
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Hi,

   I really need some advice.  I'm nearly resistant to everything and

have been on DDI, D4T and Kaletra for 5 years.  My numbers, though not

great (209 T's and 5,700 Viral Load) have remained steady and even

climbed a bit in those 5 years (I also feel/look great and never had a

side effect or opportunistic infection).  Suddenly my doctor says it

isn't ethical for him to prescrib DDI and D4T together because of newly

published reports of side effects and my only last option is to start

Fuzeon, which, of course, I'd rather not do or put off longer.

   This is very frustrating cause i was coasting along fine before.  Is

it true that DDI and D4t can't be prescribed together any longer?  Now

they've taken me off it as of a month ago and, not surprisingly, my

viral load has shot up to 60,000.

   Thanks,

Brian


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#1192 From: simon collins <simon.collins@...>
Date: Tue Dec 16, 2008 12:41 am
Subject: Re: DDI and D4T 		simoninbrixt...
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It has probably been unethical for your doc to prescribe d4T+ddI for at least the last fiver years possibly longer in may peoples views. However if you really had no side effects there are sometimes exceptions - just sounds very out of date. Withdrawing the nukes in my opinion was unethical rather than replacing then with newer drugs.

I'm not aware of any recent law that would have banned this.

If you have been on Kaletra successfully for 5 years (is your viral load undetectable?) then there are plenty of other options other than T-20.

Raltegravir + Kaletra, both twice daily, would have been the easiest to switch too when your viral load was still undetectable, but there are others you could add, included 3TC or newer drugs.

I'd feel more confident if you were to see a new doctor asap, or at least get a second opinions.





Hi,
I really need some advice. I'm nearly resistant to everything and
have been on DDI, D4T and Kaletra for 5 years. My numbers, though not
great (209 T's and 5,700 Viral Load) have remained steady and even
climbed a bit in those 5 years (I also feel/look great and never had a
side effect or opportunistic infection). Suddenly my doctor says it
isn't ethical for him to prescrib DDI and D4T together because of newly
published reports of side effects and my only last option is to start
Fuzeon, which, of course, I'd rather not do or put off longer.
This is very frustrating cause i was coasting along fine before. Is
it true that DDI and D4t can't be prescribed together any longer? Now
they've taken me off it as of a month ago and, not surprisingly, my
viral load has shot up to 60,000.
Thanks,
Brian


Reply | Forward
#1193 From: Okiemo59@...
Date: Tue Dec 16, 2008 4:45 am
Subject: Re: DDI and D4T 		Okiemo59@...
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Brian, I agree! 

I'm a nurse (RN,BSN) who used to work in a Ryan White Clinic and I've taught T-20 injections.  I will tell you as a nurse you must call your doctor and discuss with him what his plans are.  Don't wait.  If he/she ignores you or doesn't give you an answer you can live with get a second opinion soon!  In fact it never hurts to have a second opinion anyway.  If your doctor is worth his/her salt they won't be bothered by your getting another set of eyes to look at your case.

This is your life!!!  Don't let anyone keep you from getting the care you need!  You are in charge of your own health care.

All the best!
Okiemo59

-----Original Message-----
From: simon collins <simon.collins@...>
To: FuzeonSupport@yahoogroups.com
Sent: Mon, 15 Dec 2008 6:41 pm
Subject: Re: [FuzeonSupport] DDI and D4T

It has probably been unethical for your doc to prescribe d4T+ddI for at least the last fiver years possibly longer in may peoples views. However if you really had no side effects there are sometimes exceptions - just sounds very out of date. Withdrawing the nukes in my opinion was unethical rather than replacing then with newer drugs.

I'm not aware of any recent law that would have banned this.

If you have been on Kaletra successfully for 5 years (is your viral load undetectable?) then there are plenty of other options other than T-20.

Raltegravir + Kaletra, both twice daily, would have been the easiest to switch too when your viral load was still undetectable, but there are others you could add, included 3TC or newer drugs.

I'd feel more confident if you were to see a new doctor asap, or at least get a second opinions.





Hi,
I really need some advice. I'm nearly resistant to everything and
have been on DDI, D4T and Kaletra for 5 years. My numbers, though not
great (209 T's and 5,700 Viral Load) have remained steady and even
climbed a bit in those 5 years (I also feel/look great and never had a
side effect or opportunistic infection). Suddenly my doctor says it
isn't ethical for him to prescrib DDI and D4T together because of newly
published reports of side effects and my only last option is to start
Fuzeon, which, of course, I'd rather not do or put off longer.
This is very frustrating cause i was coasting along fine before. Is
it true that DDI and D4t can't be prescribed together any longer? Now
they've taken me off it as of a month ago and, not surprisingly, my
viral load has shot up to 60,000.
Thanks,
Brian


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