Search the web
Sign In
New User? Sign Up
FuzeonSupport
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Efficacy and Tolerance of the Switch From Enfuvirtine to Raltegravi   Message List  
Reply | Forward Message #1115 of 1195 |
Re: [FuzeonSupport] Re: I need your knowledge #3 - new question

In a message dated 7/4/2007 12:56:15 P.M. Central Daylight Time, curtishome@... writes:

My doctor tells me that Mk 518 and Prezista are available to me now but not TMC125. She is running a GRACE study on TMC125 whose protocol states that only FDA approved meds can be taken in conjunction with it. Since MK518 is waiting final approval (not till Oct) it is ruled noncompliant for the study.

Nelson, are you aware of another way to get these three drugs together in combination?

TMC 125 can be obtained via expanded access but most people may already have resistance to it. It is imperative that your doctor tells you if your virus has the main mutations that renders TMC 125 ineffective.
 
MK 518 can be obtained also via expanded access. Their web site is http://benchmrk.com/secure/earmrk/earmrk.html
 
Prezista is already approved and can be obtained by prescription
 
Your doctor may be one of those that only likes to enroll people in studies since they pay for patients to enroll. Expanded Access Programs (EAPs) cost doctors money since most pharma companies do not pay for enrollment so many doctors decide not to enroll in them. Tibotec  pay $500 per EAP patient and Merck does not pay at all.
 
I think any patient with multidrug resistance is doing  himself/herself a diservice by seeing a doctor who does not participate in EAPs

Regards,

Nelson Vergel
powerusa dot org




See what's free at AOL.com.


Wed Jul 4, 2007 6:03 pm

nelsonvergel
Offline Offline
Send Email Send Email

Forward
Message #1115 of 1195 |
Expand Messages Author Sort by Date

Efficacy and Tolerance of the Switch From Enfuvirtine to Raltegravir in Antiretroviral Therapy Regimen in HIV Patients With Undetectable Viral Load (EASIER) ...
PoWeRTX@...
nelsonvergel
Offline Send Email
Jun 28, 2007
5:19 am

Dear Nelson: I am writing hoping I am not bothering you, this is my 2nd letter to you.I am writing because I know you and I are basically in the same position...
mntwister
Offline Send Email
Jul 3, 2007
8:06 pm

In a message dated 7/3/2007 3:08:35 P.M. Central Daylight Time, mntwister@... writes: Dear Nelson: I am writing hoping I am not bothering you, this is my...
PoWeRTX@...
nelsonvergel
Offline Send Email
Jul 3, 2007
9:04 pm

Nelson, thank you so much for such a fast response. It seems a shame to me that when they went into production and research on the CCr5 med, that they didn't...
mntwister
Offline Send Email
Jul 3, 2007
11:30 pm

In a message dated 7/3/2007 6:31:29 P.M. Central Daylight Time, mntwister@... writes: Nelson, thank you so much for such a fast response. It seems a...
PoWeRTX@...
nelsonvergel
Offline Send Email
Jul 4, 2007
12:10 am

Nelson, I live in northern Minnesota, north of Duluth, and I go to Dr. Keith Henry in Minneapolis, who I have high regard for. I am sure you have heard of...
mntwister
Offline Send Email
Jul 4, 2007
4:25 am

In a message dated 7/3/2007 11:26:01 P.M. Central Daylight Time, mntwister@... writes: Nelson, I live in northern Minnesota, north of Duluth, and I go to...
PoWeRTX@...
nelsonvergel
Offline Send Email
Jul 4, 2007
4:55 am

Hi Nelson / Robert Thanks Nelson for the discussion and Robert for sharing a very similar story. My viral load is off the chart and my CD4 below 20. I take...
CurtisHome
tinnmanni
Offline Send Email
Jul 4, 2007
5:55 pm

In a message dated 7/4/2007 12:56:15 P.M. Central Daylight Time, curtishome@... writes: My doctor tells me that Mk 518 and Prezista are available to...
PoWeRTX@...
nelsonvergel
Offline Send Email
Jul 4, 2007
11:40 pm

Brent I started taking TMC 114+125 + Truvada + DDI and after 4 weeks went from 60K viral load to "0" And TCells went from 29 to 200+ And it has been like that...
Jorge Lallemand
jlallema
Offline Send Email
Jul 4, 2007
11:43 pm

Brent, sound like we are in the exact same position. It's been hard, as I am sure you know, waiting for these meds. When my t count is under 20 (been that way...
Rob
mntwister
Offline Send Email
Jul 5, 2007
2:40 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help