The group focus is on members whose primary scoliosis surgeries took place in the 60's, 70’s, 80’s and early 90's and now find themselves facing the challenges of flatback deformity and/or fixed sagittal imbalance which is often the result of the use of nonsegmental (Harrington rod) instrumentation.

Flatback deformity is a loss of normal lumbar lordosis, or curve. The medical term for this is fixed sagittal imbalance. Flatback typically develops when there has been a posterior spinal fusion with distraction instrumentation (ex: Harrrington rod). It is often accompanied by degeneration, instability, and stenosis. Most people also experience fatigue and muscle pain. A leaning forward posture, or being "bent over" is typical.

Often this leads to revision surgery, which includes instrumentation and augmented fusion. Typically this reduces and stabilizes the flatback deformity and reestablishes balance. With proper selection of technique for each individual patient's spine, a qualified and skilled surgeon may improve the patient’s pain, quality of life, and functional capacity. This is not an operation to be entered into lightly.

This group offers members support and understanding while we each move through the decision to undergo, delay or forgo surgery. We also offer each other guidance, support and information on finding appropriate methods for reducing pre- and post- operative pain or disability. We are a safe and caring place to share life experiences as we each deal with our own personal “scoliosis odyssey”.

painting by Ann McDonald