Hi, I'm a teenager with FEVR and visit Moorefields Eye Hospital in London, UK every year. I have recently been to visit the hospital, to see if there is...
Hi, haven't posted on the board for awhile but we just wanted to share some positive news. As a background our daughter was diagnosed at 8 months. She has FEVR...
I have received an E-mail from Dr. Tsilou, head of the National Institute of Health (NIH) Eye Clinic that the FEVR genetic clinical study is ending due to lack...
Hi, my son is 4-year old who has just diagonised to have X-linked Juvenile Retinoschesis. I just want to know if it is same as FEVR? We are in Hong Kong and...
Hi. I'm 17 years old and have had FEVR since I was born. It's never really affected me much and I've never had much of a problem with it, up until when i was...
Subject: Translators Wanted for fevr.net Website From: Jane Young, Host for http://fevr.net If anyone out there in cyberspace writes another language and would...
Hi to All- It's Christina, mother to Hailey and Hannah who have FEVR, and I have a question for everyone. I have a genetic condition called Factor V Leiden...
Hi We are from Australia and our daughter Rose has fevr (most probably a ressesive form as there is no family history of anything similar in either family)...
Promising news from a group seeking to provide relief from retinal diseases: http://news.bostonherald.com/news/regional/general/view.bg?articleid=1078909"...
I am passing on this letter I recieved. ... Hi Ms. Young, I came across your FEVR website and wanted to update you on our new Retina Institute at Childrens...
Anyone who has knowledge of any current studies or reading concerning FEVR, please pass along any information you might have. Thank you very much. Bill Hassett...
I am really new to this my 2 year old daughter just received NEVR as a provisional diagnosis after the discovery of a retinal detachment. We still do not know...
Good luck, Jane. i can't begin to tell you how much this website has helped me and my family. My 7 yo son has x-linked FEVR. we have been going to Detroit for...
hi all i haven't posted here in ages but i wanted to let everyone know that my 7 yo son- who has Xlinked FEVR- had an awesome report from Trese in July. his...
Hi to all- It's Christina, mother to Hailey and Hannah who have FEVR and go to Michigan to see Dr. Trese. I have a quick question- Does anyone know of any...
Thank you so such, the NEVR was a typo, my daughter has a preliminary diagnosis of FEVR based on apartially detached retina in her right eye.We do not have a...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the FEVRnet group. File : /FEVR Article...
The NIH Trial Started 5 years ago has developed and changed. NEW! - Your doctor can now send blood to the National Institutes of Health for testing of 2 FEVR...
Hello All Old fevr.net message board members, unfortunately the old message board was taken down by an invasion of a hacker to spread spam E-mail. There goes...
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