I have received an E-mail from Dr. Tsilou, head of the National Institute of
Health (NIH) Eye Clinic that the FEVR genetic clinical study is ending due to
lack in intrest. Only 1 person joined the study past 15 months.

From Dr. Tsilou
"I can e-mail you a short summary of the study when I will be able to make
one. Termination of the study means that people cannot get genetic testing
through this study any more... he NIH clinical study is ending July 15, 2009. I
just hope we will able to do a treatment study one day but I have no plans at
this point...
Dr Tsilou"

If you havent participated in the study you only have 1 month left to do so.

If you are intrested here is the contact information.
---------------------------
Ekaterini T. Tsilou, M.D.
National Eye Institute (NEI)
National Institutes of Health
Building 10 Room 10N226
10 Center Drive
Bethesda, Maryland 20892
Phone: (301) 496-3577
Fax: (301) 402-1214
E-mail: tsiloue@...
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Jane Young
FEVR.NET sponsor