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FEVRnet · Familial Exudative Vitreoretinopathy
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Reply | Forward Message #30 of 46 |
Re: laser treatment

We have an 8 year old son who was diagnosed with FEVR at age 4. He had
laser treatment around his 5th birthday to zap rogue blood vessels in
his eyes (the peripheral retina, specifically). The surgery was done
on his left eye first (601 laser zaps) and his right eye 5 weeks later
(316 zaps). He had an experimental steroid (kenalog) injection to
treat some lipids collecting in his left eye, which required us to
give him eye drops for a year afterward to reduce the possibility of
him getting glaucoma. He also had to go to the doctor to have his eye
pressure checked frequently. That part of the procedure seemed to be
more of a problem later on when he developed a subcapsular cataract in
that eye as a result of the steroid shot. That came as a complete
shock to us because we thought we only had to worry about his getting
glaucoma. We have been advised not to get our son cataract surgery
unless his vision deteriorates significantly as this would require
changing out the artificial lens periodically as he grows and cataract
surgery is experimental in children. Although it doesn't really affect
him, he has scars from the laser to this day. He has no peripheral
vision, but that was a result of the FEVR not the surgery/scar tissue
from the laser treatment.

From our experience I would say go ahead with the laser treatment. If
you don't, I think she could develop a detached retina. The parts of
the eye that get zapped do not help with the vision anyway (because
there are no blood vessels there since she has FEVR), so you aren't
losing any functionality. However, I would be prepared with questions
about alternate treatments to steroids.

James




Fri Jun 6, 2008 1:09 pm

jameswilkins
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Message #30 of 46 |
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Hi We are from Australia and our daughter Rose has fevr (most probably a ressesive form as there is no family history of anything similar in either family)...
darryl.beales
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Jun 5, 2008
10:56 am

Hi Kerrie, We have a daughter just a little younger than yours. She has FEVR in both eyes, but more noticeably in her left. At 1 y.o. she had a scleral buckle...
gwkuma007
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Jun 5, 2008
12:30 pm

We have an 8 year old son who was diagnosed with FEVR at age 4. He had laser treatment around his 5th birthday to zap rogue blood vessels in his eyes (the...
James Wilkins
jameswilkins
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Jun 6, 2008
1:09 pm

My daughter has had laser treatment in one eye for her FEVR. It was relatively painless for her and she has not needed any follow-up. ("Relative" to cryo...
kelley242424
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Jun 15, 2008
12:53 am
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