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FEVRnet · Familial Exudative Vitreoretinopathy
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Reply | Forward Message #28 of 46 |
Hi

We are from Australia and our daughter Rose has fevr (most probably a ressesive
form as
there is no family history of anything similar in either family) and is also
very myopic.
Fortunately her little brother does not have fevr. She is 6 and recently is
showing signs of
exudate. Her retinal specialist is going to get another specialist he works with
sometimes to
review her as well, as he is considering whether he should do some laser work on
her eye
now or wait and see. Unfortunately it is her better eye that is showing
problems, with her
vision in this eye currently 6/21. Her vision in her other eye only is about
6/60 with macula
problems.

Could anyone who has had this treatment give me an idea of what she would
experience
with this treatment as I have no idea how to explain the surgery to her if we
need to do it.

Thanks

Kerrie




Thu Jun 5, 2008 10:56 am

darryl.beales
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Message #28 of 46 |
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Hi We are from Australia and our daughter Rose has fevr (most probably a ressesive form as there is no family history of anything similar in either family)...
darryl.beales
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Jun 5, 2008
10:56 am

Hi Kerrie, We have a daughter just a little younger than yours. She has FEVR in both eyes, but more noticeably in her left. At 1 y.o. she had a scleral buckle...
gwkuma007
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Jun 5, 2008
12:30 pm

We have an 8 year old son who was diagnosed with FEVR at age 4. He had laser treatment around his 5th birthday to zap rogue blood vessels in his eyes (the...
James Wilkins
jameswilkins
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Jun 6, 2008
1:09 pm

My daughter has had laser treatment in one eye for her FEVR. It was relatively painless for her and she has not needed any follow-up. ("Relative" to cryo...
kelley242424
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Jun 15, 2008
12:53 am
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