Hi. I'm 17 years old and have had FEVR since I was born. It's never
really affected me much and I've never had much of a problem with it,
up until when i was 15/16 when it hit me that i couldn't do the same
things as other people my age. Most of my friends were getting mo-peds
etc when I couldn't.

My vision is around 4/20 left and 6/20 right. As I'm now 17.. It's
really hit me that I'll never be able to drive and It's only now that
I've decided i want to look into FEVR more.

I'm under Moorefields eye hospital in London, but I haven't found them
to be that helpfull the last few years. I've been put into the
childrens ward under Mr Moore when i should have been transferred to
the adults ward. When I go next, I'm hoping to get a few of my
questions answered as i've never really asked before.

I've been researching and come accross an article about stem cell
treatment thats being researched and meant to cure blind people. I'm
wondering if this is going to affect FEVR patients, or its more for the
elderly/others. The article i've been looking at is
http://news.bbc.co.uk/1/hi/health/6120664.stm .

Sorry if I've posted this in the wrong place. It's my first time on
these boards and I'm just getting to grips with things.

Thanks
Luke