Sorry, I haven't been on the board for a long time.

Our daughter was diagnosed at 8 months and then had a sceleral
buckle fitted to her right eye at 14 months in the hope of stopping
it from detaching. She's now 4 years 4 months - so far so good. She
is wearing quite strong prescription glasses and we patch her
stronger left eye for two hours a day so she won't get too lazy with
her poorer right eye. That seems to be working well as she seems to
still be able to function without too much impediment - the initial
diagnosis was that she would likely only see light and shadow in
that eye.

So it may just be good fortune, but I think the early diagnosis also
really helped. Being in Asia we have been going to the Fukuoka
University Hospital and can't recommend it highly enough.

--- In FEVRnet@yahoogroups.com, Amber Kilgore
<aliciakaitlynsmom@...> wrote:
>
> The earlier the better. My daughter is now almost 10. She was not
diagnosed until she was 4 yrs and 3 months. The earlier she is
diagnosed...the better you and her doctors are able to follow her
through FREQUENT check-ups. The downside to being diagnosed young
is that the earlier onset...the prognosis is not as clear.
>
> "michael.harris2" <michael.harris2@...> wrote: I am
really new to this my 2 year old daughter just received NEVR as a
> provisional diagnosis after the discovery of a retinal detachment.
We
> still do not know much yet, but I was wanting to know if anyone
had any
> information on the benefits of early detection. We think our
previous
> optometrist may have noticed something and failed to inform us
about it.