Hi to all-
It's Christina, mother to Hailey and Hannah who have FEVR and go to
Michigan to see Dr. Trese. I have a quick question- Does anyone know
of any programs out there that could help with FEVR treatment? My
girls currently get Medical Assistance through the state of Minnesota
but they don't cover out-of-state services. We are currently
appealing that decision. We are wondering if their are any studies or
anything that we could enroll the girls in to help with the medical
bills. We just went to Michigan in June...thank God nothing had to be
done...and will probably be going back in October. Even though they
didn't have any surgery, the bill will still be about $8,000.00 for
the two of them because of the EUAs.
thanks,
Christina