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FEVRnet · Familial Exudative Vitreoretinopathy
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Early detection   Message List  
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Re: [FEVRnet] Early detection

The earlier the better. My daughter is now almost 10.  She was not diagnosed until she was 4 yrs and 3 months.  The earlier she is diagnosed...the better you and her doctors are able to follow her through FREQUENT check-ups.  The downside to being diagnosed young is that the earlier onset...the prognosis is not as clear.

"michael.harris2" <michael.harris2@...> wrote:
I am really new to this my 2 year old daughter just received NEVR as a
provisional diagnosis after the discovery of a retinal detachment. We
still do not know much yet, but I was wanting to know if anyone had any
information on the benefits of early detection. We think our previous
optometrist may have noticed something and failed to inform us about it.



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Sat Jul 28, 2007 10:45 pm

aliciakaitly...
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Message #12 of 46 |
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I am really new to this my 2 year old daughter just received NEVR as a provisional diagnosis after the discovery of a retinal detachment. We still do not know...
michael.harris2
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Jul 4, 2007
10:41 pm

The earlier the better. My daughter is now almost 10. She was not diagnosed until she was 4 yrs and 3 months. The earlier she is diagnosed...the better you...
Amber Kilgore
aliciakaitly...
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Jul 28, 2007
10:45 pm

Sorry, I haven't been on the board for a long time. Our daughter was diagnosed at 8 months and then had a sceleral buckle fitted to her right eye at 14 months...
gwkuma007
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Oct 1, 2007
4:47 am
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